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Desperately need help with wife and my gluten allergy.


Stulos

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Stulos Rookie

Mast Cell Activation Syndrome is what my immunologist ended up diagnosing me with. 


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  • Stulos

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  • knitty kitty

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Top Posters In This Topic

  • Stulos

    Stulos 16 posts

  • knitty kitty

    knitty kitty 13 posts

  • shadycharacter

    shadycharacter 10 posts

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    trents 8 posts

knitty kitty Grand Master

But what is your immunologist suggesting you do to improve the MCAS? 

Stulos Rookie

Nothing. He said there is no medicine left to try. Just take the Low Dose Naltrexone and stay away from the allergens. 

He says if it hurts me don't be exposed to it. 

shadycharacter Enthusiast
1 hour ago, Stulos said:

I do describe it as an allergy. As far as I, and my immunologist, can see it is. She says it's not and I'm mentally ill.

Says that right in front of kids and now some of them are saying it.

I did have a lawyer I spoke with once say it was considered abuse to make someone sick with an allergen you know they have. I don't know who that person was though and can't contact them again. I was calling around once desperate when I was made to live in that shed for over a year. 

Do you have or could you get a document from the immunologist to support your case? 

I'm not American and don't know much about US law, but I've come across the term abandonment somewhere. Is she trying to drive you out of the home and force you to abandon them? If so there is also a term "constructive abandonment" where the person making it impossible for a spouse to stay, for example because of abuse, can be seen as guilty of constructive abandonment:

What if the spouse who walks out has a good reason for doing so? Courts recognize something called "constructive abandonment," which refers to behavior that essentially forces the other spouse to leave. 

https://www.divorcenet.com/resources/abandonment-and-desertion-in-divorce.html

knitty kitty Grand Master

@Stulos,

Vitamin D, Vitamin C, B Complex, magnesium and extra Thiamine (Benfotiamine and Thiamine Hydrochloride) will help immensely.  

Mast cells degranulate (release histamine) easily when there is a deficiency of Thiamine.

Taking high dose Thiamine helped me with MCAS.  I took Benfotiamine and Thiamine Hydrochloride.  I took 1000 mg or more every day.  It really helps and results come very quickly.

Reading material for MCAS...

https://www.hormonesmatter.com/reversing-mast-cell-activation-and-histamine-intolerance-summit/ 

And...

https://pubmed.ncbi.nlm.nih.gov/10411347/

And...

 

Rogol72 Collaborator

@Stulos,

I agree with @knitty kitty, getting sufficient vitamins and minerals will help with histamine intolerance ... especially Vitamin D and Thiamine. I remember coming across this site when I was researching HI ... https://mastcell360.com/ . Read her Bio, it may be a good fit for you and your particular situation.

Here's another good resource ... https://www.histamineintolerance.org.uk/allergy-mastocytosis-histamine-intolerance-so-whats-the-difference-2/

shadycharacter Enthusiast
On 7/20/2023 at 8:18 PM, Stulos said:

I do describe it as an allergy. As far as I, and my immunologist, can see it is. She says it's not and I'm mentally ill.

Says that right in front of kids and now some of them are saying it.

I did have a lawyer I spoke with once say it was considered abuse to make someone sick with an allergen you know they have. I don't know who that person was though and can't contact them again. I was calling around once desperate when I was made to live in that shed for over a year. 

Could it be that she is in such denial that she doesn't understand, or doesn’t want to understand, that she is actually harming you by ruining your allergy safe home environment that you so clearly need? Even though she has been supportive in the past. 

She accuses you of being mentally ill because you don't see it her way, but what if it's the other way round and she's the one with some kind of mental breakdown? You say she's snapped. Is she the one in need of psychiatric help? She seems to be a danger to your health, and possibly the kids' if she ignores their allergies. 

You have your immunologist and others to back up your side of the story. 

Ideally there could be some treatment for her if she's the one with a mental problem.


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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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