Any suggestions please help

[Morenaroo]

Recently I have been diagnosed with celiac. I am aware there are hidden glutens in many of our foods. Currently I am in a celiac flare up/inflammation.

Most times after I eat I visit the bathroom within 30-60 minutes and my stomach is extremely bloated which feels like my stomach is bruised. 
Sometimes I don’t eat because it’s easier than the alternative. 
When I fast I drink water and bone broth.
Because my issue has been going on for years I am extremely fatigued and food intake does not give me energy.

I am asking for recommendations, recipes and overall food that helps.

I am working with a holistic doctor and a GI doctor to help with this flare up.

Thank you,

Mo

 

[trents]

Welcome to the forum, Morenaroo!

Sounds like the issue for you is learning where and how gluten is hidden in our food supply, particularly processed foods. There is a definite learning curve for avoiding gluten. Takes a year or two but you eventually develop a sixth sense of what to avoid. Perhaps this will give you a jump start:

Everything must be scrutinized: food, medications, supplements, oral hygiene products, chewing gum, lip balm, etc. Studies show that most people who believe they are eating gluten free are actually eating lower gluten but not gluten free. This is particularly true of those who still eat out.

The other part of this is correcting vitamin and mineral deficiencies that have inevitably developed over the years of not being diagnosed and the resultant damage to the villi that line the small bowel. This is the area of the intestinal track where essentially all of our nutrition is absorbed. When the villi are worn down by celiac disease, absorption of nutrients becomes compromised. We routinely advise people to on a high potency B vitamin supplement, plus sublingual B12, at least 5000 IU of D3, magnesium citrate or magnesium glycinate and zinc. Make sure all vitamins and supplements are gluten free. Costco's Kirkland and Nature Made products are generally a good choice.

[Scott Adams]

We have tons of gluten-free recipes in this category:

https://www.celiac.com/celiac-disease/gluten-free-recipes/

[knitty kitty]

@Morenaroo,

Gastrointestinal beriberi is caused by a deficiency in Thiamine Vitamin B1.  The symptoms I had are similar to what you describe. 

Here's more information...

Gastrointestinal beriberi: a forme fruste of Wernicke's encephalopathy?

https://pubmed.ncbi.nlm.nih.gov/29982183/

And...

Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

High dose Thiamine corrected my symptoms!

Hope this helps!

[Wheatwacked]

Check your vitamin D blood level.  Normal in summer is 80 ng/ml (200 nmol/L).  I require 10000 iu a day to keep it there.  Vitamin D at higher levels modulates the immune system.

For energy heres my current list.

• Thiamine  500 mg
• B3 500 mg
• B5 500 mg
• B12 1,000 mcg (1 mg)
• Taurine  1000 mg essential antioxidant amino acid
• Choline 500 mg - required for fat digestion.
• Magnesium Citrate - 500 mg I add two ounces of the Grape flavor kiqud to 20 ounces of water.
• Nori or Kelp for iodine  - muscle tone, thyroid health

In the morning I have coffee or espresso, Kelp and a Red Bull.  Red bull is only essential vitamins needed to turn glucose to energy, minerals, real sugar and flavoring.  No exotic herbs, just plain nutrition.

I eat mostly garden vegetables, salmon, eggs, beef.

  On 7/19/2023 at 4:01 PM, Morenaroo said:

ometimes I don’t eat because it’s easier than the alternative. 

Expand Quote  

Been there.  A lifetime of coffee and cigarettes to subdue hunger.

But, as I remind myself often, Eating is Not Optional.

Edited July 23, 2023 by Wheatwacked

[patty-maguire]

Other posters have giving good advice for recognizing gluten in your food.  To address your ongoing bathroom issues, I have 2 suggestions:

1. At least for a while, avoid gluten free processed foods.  They often contain ingredients like emulsifiers and starches that can be hard to digest.  If you focus your diet on naturally gluten free whole foods, you may find that the inflammation settles down.  A gluten free version of the Mediterranean diet is a good template.  Also look up the Fasano diet.  Dr. Alessio Fasano who is a world renowned celiac expert recommends this for his patients who continue to have issues on a standard gluten free diet.

2. Consider if you may have other food intolerances.  Lactose intolerance is very common among newly diagnosed celiacs.  Try cutting out dairy and see if that helps.  Once your gut heals you may be able to re-introduce dairy products.  Most recommendation are 6 months to a year.  Other common intolerances among celiacs are oats (even gluten-free oats), eggs, soy.

All the best.  You've got this, it's just a bit of a learning curve.