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Feel like celiac is back

Sabaarya
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Nick Cheruka Contributor
Nick Cheruka
Posted
1 hour ago, Sabaarya said:

Oh wow,will look it up for sure!

🙂

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Nick Cheruka Contributor
Nick Cheruka
Posted
1 hour ago, Sabaarya said:

Oh wow,will look it up for sure!

If your anything like me you’ll like them! BJ’s Wholesale Club has the best price I get them by the case! It’s cheaper to do that than buying the four pack or singles!

  • 4 weeks later...
Nikki2777 Community Regular
Nikki2777
Posted

I think the problem is a misunderstanding of the word 'healed' here - there is no cure for Celiac. Healed only means that the villi have gotten back into the shape that they are supposed to be. But they are not the cause of the Celiac, just a symptom. The cause is the auto-immune disorder. So, even with 'healed' villi, you still have Celiac and any gluten will knock those villi flat again.

While I respect the experience of those who never eat out as a safety precaution, depending on where you live, you may be able to find restaurants that are very aware of cross-contamination and while not 100% safe to eat at, quite reliable (fast food is difficult, though). You can't cheat (why would you want to?), but you can eat something alongside your non-gluten-free friends. I live in a very gluten-free-aware city and eat out a lot (too much!). In 11 years since my dx, I've probably been glutened two or three times in restaurants. I know some may say that's too much, but it truly is rare.

Also, look up best practices for a shared kitchen, including having your own toaster (or using toaster bags) and a strict no double dipping rule on condiments, etc.

I recommend using reviews, Find Me Gluten Free app, Facebook groups for your area, and asking a lot of questions at a restaurant to figure out if they know what they're doing.

Good luck!

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    • trents
      New to this diagnosis

      By trents · Posted

      Welcome to the forum, @Beagirl! What you are feeling is what we have all felt to one degree or another and we typically feel it more intensely when we already have a laundry list of health issues to work around. It's often the result of a sense of loss . . . of having to say goodbye to some good foods that we enjoy that may have been part of a shrinking list of things that are left that we still found pleasure in. And also for many it represents a social loss . . . not being able to accept dinner invitations from family and friends because you are unsure if they know how to cook gluten free . . . not being able to go out to just any restaurant with family and friends because their menu doesn't have gluten free offerings and if it it does, are they careful with regard to cross contamination issues?
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    • herminia
      Frozen gluten -free meals

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