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Symptoms not improving. Could this be something else also?

lydialoo
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lydialoo Rookie
lydialoo
Posted

So I have been gluten-free for about 3 months now after being diagnosed. At first it was thought my thyroid was underactive also but that seems to have regulated itself. Also tested for H pylori too and that was negative.

I have a swollen tongue, fatigue, depression, bloating and dark fatty stools and infertile (i do expect that to take time). I also have a fluctuating appetite, and sometimes a weird nauseating sensation in my upper stomach. I put most of these symptoms down to b12 deficiency but taking more doesn't seem to be alleviating the issue at all!

My worry is the poop being dark, I've heard that's not typical for celiac and I can't find much on it. Could this be something else? Colitis runs in my family I'm praying it's not that. Or is this something anyone else has experienced? 

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Scott Adams Grand Master
Scott Adams
Posted

I will have to assume that your diet has been 100% gluten-free. The dark stool could be a sign of intestinal bleeding, so be sure to run this by your doctor, especially if you have colitis in your family. 

This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet:

However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

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