Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cookies


Dianna Frances

Recommended Posts

Dianna Frances Newbie

My husband made me nobakes with lactaid(dairy allergy) and gluten free oats. So why did I end up sick? Pain in my right side of stomach,  diarrhea.  They also had brown sugar, white sugar, egg, vailla extract.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Welcome to the forum, @Dianna Frances!

Lactaid is used in lactose intolerance which is different from a dairy allergy.  

Some people have lactose intolerance because they lose the ability to produce the enzyme lactase which digests lactose (the sugar in dairy).  Lactaid has the digestive enzyme lactase added to it.  

In dairy allergy, there's a reaction to Casein, the protein in dairy.  

About fifty percent of people with Celiac Disease react to Casein as though it were gluten.  Segments of Casein resemble segments of  gluten (molecular mimicry) and our anti-gluten  antibodies attack both.  

Some people with CeD react to the protein avenin in oats the same as to gluten.  

Eggs are a high histamine food and many cannot tolerate eggs until their histamine levels become lower as they heal.  

White and brown sugar can spike blood glucose levels, and contribute to Small Intestinal Bacterial Overgrowth (SIBO) and may result in diarrhea.  

Some people with CeD have low stomach acid and damage to their small intestine which causes stomach and abdominal pain.  Liver and gallbladder issues can also affect affect digestion and abdominal pain.  

How long have you been gluten free? By choice or by diagnosis?  Which symptoms led to your diagnosis or decision?

 

Dianna Frances Newbie

I was officially diagnosed one year ago. I have had so.many issues over the years and was told so many different things. However,  in January 2023 I went gluten free but still learning so much. Dairy allergy was given to me about 20 years ago, prior to that it was said I had an intolerance. I have lost over 20 pounds this past year. 137 to 115

knitty kitty Grand Master

Okay, thanks for answering my questions.  

Yes, many of us here get misdiagnosed for ten years or more before we are correctly diagnosed.  

Were you losing weight because you were not eating or because you had digestive problems?  

What have you been eating?  Are you vegetarian?   

Dianna Frances Newbie

Not eating, I eat basically vegetables cereal dairy free yogart lots of salad and tons of digestive issues

knitty kitty Grand Master

Meat, and fish are great sources of the eight essential B vitamins, fat soluble vitamins and minerals.  Including more meat in ones diet provides these nutrients and also proteins that our bodies use for repair and maintenance.  

I found a Paleo diet called the Autoimmune Protocol Diet very helpful.  It excludes gut irritating plant lectins found in beans, grains, and nuts.  Nightshades,  dairy and eggs are excluded, too.  Low Histamine food choices are helpful in reducing inflammation.  

Correcting nutritional deficiencies that occur in Celiac Disease is essential.  Many newly diagnosed people have deficiencies in Vitamin D, iron, zinc, and eight essential B vitamins.  Supplementing with B Complex allows a larger amount to be available for easier absorption in our damaged intestines.  

A deficiency in Thiamine Vitamin B 1 can cause Gastrointestinal Beriberi which results in tons of digestive issues.  

Have you been referred to a Nutritionist?  Talk to your doctor about supplementing to correct nutritional deficiencies common in CeD. 

Which digestive issues bother you the most?

Dianna Frances Newbie

I seem to get diarrhea every time I eat. I also get severe Migraines abd have slight allergies to several nuts. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

High histamine levels can produce all those symptoms.  So can nutritional deficiencies.  

Have you tried a low histamine diet?  Nuts are high histamine.  

Migraines can be a symptom of Thiamine deficiency and high histamine.  

Are you keeping a food journal to help you track which foods cause digestive problems?  

Helpful Reading...

Histamine Intolerance Originates in the Gut

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8069563/

icelandgirl Proficient

Hi Dianna,

I'm so sorry that you are feeling poorly!  

Have you considered the oats as the cause of the issue.  I think that something like 10% of Celiacs react to oats in a similar way that they do to gluten.  Even gluten free oats.  I am one of the Celiacs who can't tolerate oats at all.  If I eat oats I get severe abdominal pain and diarrhea.

Just something else to consider.  I hope that you get to feeling better!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Insomnia help

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.