Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cookies


Dianna Frances

Recommended Posts

Dianna Frances Newbie

My husband made me nobakes with lactaid(dairy allergy) and gluten free oats. So why did I end up sick? Pain in my right side of stomach,  diarrhea.  They also had brown sugar, white sugar, egg, vailla extract.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Welcome to the forum, @Dianna Frances!

Lactaid is used in lactose intolerance which is different from a dairy allergy.  

Some people have lactose intolerance because they lose the ability to produce the enzyme lactase which digests lactose (the sugar in dairy).  Lactaid has the digestive enzyme lactase added to it.  

In dairy allergy, there's a reaction to Casein, the protein in dairy.  

About fifty percent of people with Celiac Disease react to Casein as though it were gluten.  Segments of Casein resemble segments of  gluten (molecular mimicry) and our anti-gluten  antibodies attack both.  

Some people with CeD react to the protein avenin in oats the same as to gluten.  

Eggs are a high histamine food and many cannot tolerate eggs until their histamine levels become lower as they heal.  

White and brown sugar can spike blood glucose levels, and contribute to Small Intestinal Bacterial Overgrowth (SIBO) and may result in diarrhea.  

Some people with CeD have low stomach acid and damage to their small intestine which causes stomach and abdominal pain.  Liver and gallbladder issues can also affect affect digestion and abdominal pain.  

How long have you been gluten free? By choice or by diagnosis?  Which symptoms led to your diagnosis or decision?

 

Dianna Frances Newbie

I was officially diagnosed one year ago. I have had so.many issues over the years and was told so many different things. However,  in January 2023 I went gluten free but still learning so much. Dairy allergy was given to me about 20 years ago, prior to that it was said I had an intolerance. I have lost over 20 pounds this past year. 137 to 115

knitty kitty Grand Master

Okay, thanks for answering my questions.  

Yes, many of us here get misdiagnosed for ten years or more before we are correctly diagnosed.  

Were you losing weight because you were not eating or because you had digestive problems?  

What have you been eating?  Are you vegetarian?   

Dianna Frances Newbie

Not eating, I eat basically vegetables cereal dairy free yogart lots of salad and tons of digestive issues

knitty kitty Grand Master

Meat, and fish are great sources of the eight essential B vitamins, fat soluble vitamins and minerals.  Including more meat in ones diet provides these nutrients and also proteins that our bodies use for repair and maintenance.  

I found a Paleo diet called the Autoimmune Protocol Diet very helpful.  It excludes gut irritating plant lectins found in beans, grains, and nuts.  Nightshades,  dairy and eggs are excluded, too.  Low Histamine food choices are helpful in reducing inflammation.  

Correcting nutritional deficiencies that occur in Celiac Disease is essential.  Many newly diagnosed people have deficiencies in Vitamin D, iron, zinc, and eight essential B vitamins.  Supplementing with B Complex allows a larger amount to be available for easier absorption in our damaged intestines.  

A deficiency in Thiamine Vitamin B 1 can cause Gastrointestinal Beriberi which results in tons of digestive issues.  

Have you been referred to a Nutritionist?  Talk to your doctor about supplementing to correct nutritional deficiencies common in CeD. 

Which digestive issues bother you the most?

Dianna Frances Newbie

I seem to get diarrhea every time I eat. I also get severe Migraines abd have slight allergies to several nuts. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

High histamine levels can produce all those symptoms.  So can nutritional deficiencies.  

Have you tried a low histamine diet?  Nuts are high histamine.  

Migraines can be a symptom of Thiamine deficiency and high histamine.  

Are you keeping a food journal to help you track which foods cause digestive problems?  

Helpful Reading...

Histamine Intolerance Originates in the Gut

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8069563/

icelandgirl Proficient

Hi Dianna,

I'm so sorry that you are feeling poorly!  

Have you considered the oats as the cause of the issue.  I think that something like 10% of Celiacs react to oats in a similar way that they do to gluten.  Even gluten free oats.  I am one of the Celiacs who can't tolerate oats at all.  If I eat oats I get severe abdominal pain and diarrhea.

Just something else to consider.  I hope that you get to feeling better!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,498
    • Most Online (within 30 mins)
      7,748

    Rated H
    Newest Member
    Rated H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...