How to tell when have sensitivity - new celiac

[RTesp]

I’ve been reading a good amount of posts on here, I am recently diagnosed celiac disease and I am seeing a dietitian tomorrow - but want to know about everybody’s experience to tell when you do not tolerate a food - dairy, oat, corn, soy, etc. it’s been the toughest thing for me now that I am gluten free to piece together what other sensitivities I may have. I keep a food diary but unsure what to expect to feel right away or delayed when not able to tolerate something in the early stages of celiac. 
 

only thing I noticed when I have ensure protein shake I get this fogginess shortly after , it’s labeled as gluten free but does contain soy and other additives - would that be considered a reaction? I’m just not sure what to expect when to piece together what I don’t tolerate!

 

 

[Bekah R.]

New Celiac here 🖐️ when about a year and a half ago now I began getting random food sensitivities to A LOT of foods over many months, after messing with my diet I've found that gluten was my biggest problem and since being off of it for several months now I'm beginning to be able to eat different foods again. When I'm sensitive to a food I usually get a little bit nauseous after eating it, feel sluggish and bloated, and my stomach will grumble within an hour or two after eating the food from gas bubbles, then if it's particularly bad the runs will ensue. My rule of thumb though is if it makes you feel bad in any way put it on the sus foods list and try it again once your body has calmed down and you are certain all the foods you've been eating are safe for you, then if you try it again and still feel bad then it's likely a food that you can't tolerate, at least until your body has had time to recover from the gluten effects.

 

When I began I was sensitive to nearly all foods but the big ones were gluten, lactose, eggs, red meat, cheap oils (canola, soy, sunflower) and seeds (sunflower, chia, flax). Now I can eat seeds and oils fine, I can have dairy if I take lactase pills/tablets, and red meat and eggs can be eaten once in a while, I have to get the fancy pasture raised eggs to be able to tolerate them though. My theory is they feed so much wheat and grains to the mass production chickens that it effects their eggs but that's just speculation.

 

I hope that helps and good luck on your food journey! Remember that it takes time, but keep on going, it gets better once you find what works for you ❤️

[trents]

"Pasture raised eggs"? That sounds like it would apply to cows rather than chickens. Do you mean "free range" chickens?

Another factor here with regard to food sensitivities in addition to gluten is not only what you eat but how much of it and how often. There often is a threshold of toleration for certain food sensitivities that if you stay below it you can eat those things occasionally and in limited amounts.

[RTesp]

Thank you Bekah for the supporting post! It’s been stressful being recently diagnosed as celiac and some things feel just like a big trial and error. So can be discouraging at times, my dietitian appointment in an hour or so pretty excited to get some better directions too!!!  

 

also Trents, I think I did notice and I know it is hotly debated based on my research and on this forum too - but I think I do react to cheerios. On different occasions after I have cheerios shortly after the brain fog sets in, the nausea, and just worse over the next hours. I’ve isolated it down to cheerios but I have been eating them everyday for a few while, twice a day. But not every time, some occasions I can believe I can pinpoint it to cheerios. It’s hotly debated, but would the threshold apply to cheerios or maybe it’s something I avoid altogether - or perhaps it’s not exactly cheerios but a sensitivity to oats. Might skip on it for now though and reassess later … 

[Scott Adams]

It's been a while, but as I recall there are so many ingredients in Ensure, that it would be difficult to know for sure exactly which is causing you issues. I recommend pairing down the foods you eat to whole foods for a while, so stick to vegetables, meats, nuts, fruits, cheeses, etc., and then slowly eliminate the most common allergens one at a time for at least 2-3 weeks each. You may want to proceed in this order:

1. Milk/Casein
2. Eggs
3. Peanuts
4. Tree nuts (such as almonds, cashews, walnuts)
5. Soy
6. Fish
7. Shellfish (such as shrimp, crab, lobster)
8. Sesame seeds
9. Mustard

[Bekah R.]

On 2/9/2024 at 10:29 AM, trents said:

"Pasture raised eggs"? That sounds like it would apply to cows rather than chickens. Do you mean "free range" chickens?

Another factor here with regard to food sensitivities in addition to gluten is not only what you eat but how much of it and how often. There often is a threshold of toleration for certain food sensitivities that if you stay below it you can eat those things occasionally and in limited amounts.

I don't know that's just what the box literally says "pasture raised", I used to eat eggs every day, sometimes multiple times in the day and when my stomach issues began I wasn't able to eat them, now I am able to eat the eggs I've been getting pretty much daily. It may very well be that my body just has had time to heal and can tolerate more foods again, the egg thing is just a theory, I may try going back to regular eggs but honestly these ones taste better anyway 😂

[Bekah R.]

On 2/9/2024 at 10:39 AM, RTesp said:

Thank you Bekah for the supporting post! It’s been stressful being recently diagnosed as celiac and some things feel just like a big trial and error. So can be discouraging at times, my dietitian appointment in an hour or so pretty excited to get some better directions too!!!  

 

also Trents, I think I did notice and I know it is hotly debated based on my research and on this forum too - but I think I do react to cheerios. On different occasions after I have cheerios shortly after the brain fog sets in, the nausea, and just worse over the next hours. I’ve isolated it down to cheerios but I have been eating them everyday for a few while, twice a day. But not every time, some occasions I can believe I can pinpoint it to cheerios. It’s hotly debated, but would the threshold apply to cheerios or maybe it’s something I avoid altogether - or perhaps it’s not exactly cheerios but a sensitivity to oats. Might skip on it for now though and reassess later … 

Of course! This stuff is so hard to deal with but just keep trying, it'll get better! ❤️❤️❤️

[Scott Adams]

20 hours ago, Bekah R. said:

I don't know that's just what the box literally says "pasture raised", I used to eat eggs every day, sometimes multiple times in the day and when my stomach issues began I wasn't able to eat them, now I am able to eat the eggs I've been getting pretty much daily. It may very well be that my body just has had time to heal and can tolerate more foods again, the egg thing is just a theory, I may try going back to regular eggs but honestly these ones taste better anyway 😂

I also had a time after my diagnosis when I could not eat chicken eggs for a few years, but was able to eat fresh duck eggs during that time. I was able to find fresh duck eggs at farmer's markets and/or Asian markets.