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Hospital fed me gluten


MelissaLMandrick
Go to solution Solved by Scott Adams,

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MelissaLMandrick Rookie

The only time I get glutened is when I was in a hospital setting but I had proof and the endoscopy test stated that I have been exposed. There is nothing I can do. I suffer for years because of it. What can be done to provide safety or have a professional teach dietary celiac safety and make sure that no one is cross contamination. Have a place to call if you expect the hospital  is not preparing your food right and what compensation could one get because a hospital  feed them gluten while in their care. 


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Scott Adams Grand Master

Are you saying that years ago you were in a hospital that fed you gluten, even though they knew you had celiac disease, and you've had ongoing celiac disease symptoms ever since then? How long were you in the hospital, and how long ago was this?

MelissaLMandrick Rookie

It happened 3 years ago and another time a year and a half ago. 

  • Solution
Scott Adams Grand Master

This isn't the first time we've heard this story, and many with celiac disease are in fear of ever having to stay in a hospital, elder care facility, etc., as there are many bad stories that have been shared about such experiences on this site.

As far as legal action goes, this would be a civil matter, and many states limit the time period that you can file a lawsuit to a year after an incident that might cause you harm or financial loss. If you are serious about following up on this you would need to speak with an attorney in your state who handle accident/injury cases.

Have you been 100% gluten-free aside from those episodes? If so, you should have recovered by now.

MelissaLMandrick Rookie

Im still have blood in my vomit and lost my gallbladder becuse of it. And had seizures for 2 years do to vitamin deficiency. 

Scott Adams Grand Master

It sounds like you need to focus now on your recovery, and that's why this site is here. Are you taking a good gluten-free multi-vitamin and mineral supplement? 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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