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Hospital fed me gluten

MelissaLMandrick

By MelissaLMandrick
in Doctors

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Go to solution Solved by Scott Adams,

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MelissaLMandrick Rookie
MelissaLMandrick
Posted

The only time I get glutened is when I was in a hospital setting but I had proof and the endoscopy test stated that I have been exposed. There is nothing I can do. I suffer for years because of it. What can be done to provide safety or have a professional teach dietary celiac safety and make sure that no one is cross contamination. Have a place to call if you expect the hospital  is not preparing your food right and what compensation could one get because a hospital  feed them gluten while in their care. 

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Scott Adams Grand Master
Scott Adams
Posted

Are you saying that years ago you were in a hospital that fed you gluten, even though they knew you had celiac disease, and you've had ongoing celiac disease symptoms ever since then? How long were you in the hospital, and how long ago was this?

MelissaLMandrick Rookie
MelissaLMandrick
Posted
  • Author

It happened 3 years ago and another time a year and a half ago. 

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Scott Adams Grand Master
Scott Adams
Posted
  • Solution

This isn't the first time we've heard this story, and many with celiac disease are in fear of ever having to stay in a hospital, elder care facility, etc., as there are many bad stories that have been shared about such experiences on this site.

As far as legal action goes, this would be a civil matter, and many states limit the time period that you can file a lawsuit to a year after an incident that might cause you harm or financial loss. If you are serious about following up on this you would need to speak with an attorney in your state who handle accident/injury cases.

Have you been 100% gluten-free aside from those episodes? If so, you should have recovered by now.

MelissaLMandrick Rookie
MelissaLMandrick
Posted
  • Author

Im still have blood in my vomit and lost my gallbladder becuse of it. And had seizures for 2 years do to vitamin deficiency. 

Scott Adams Grand Master
Scott Adams
Posted

It sounds like you need to focus now on your recovery, and that's why this site is here. Are you taking a good gluten-free multi-vitamin and mineral supplement? 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

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      Coeliac or not coeliac

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      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

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      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
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      Coeliac or not coeliac

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      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
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