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Jsingh

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Jsingh Apprentice

My 5 year old daughter was diagnosed in January this year. Since we began gluten free diet, she has been symptom free (no tummy ache.). Only the first week of gluten free was the worst where she was in pain almost all day. No one can say gluten free withdrawal for a Celiac patient is not real.

Anyway, I though I'd make some quinoa cookies, and lo and be hold she has been complaining of tummy aches every other day since over a week now. I can't think of any thing else bothering her since this is the only thing we introduced in her diet. She has reacted the same way to buckwheat in the past. Rice seems to be the only grain she seems to be fine with. I dunno if she is super sensitive or because it's just early in the healing process and her body seems to reject anything floury- if that's even a thing, or the certified gluten free flours can also be contaminated. She seems to be fine with certified gluten free chocolate and chips etc.

I am just sharing this if any of you had any ideas or stories to share. The only other thing I can think of is sugar. We don't make many desserts, cookie is the only sugary snack made at home. Should I try certified glutenfree sugar- is that even a thing?

Thank you in advance. I am ever grateful to the people of internet.


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Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  

 

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    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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