Tingling in feet and scalp

[Therockfrog]

6 years ago I had a bad case of H Pylori.   That summer I started having super annoying tingling in my feet and front of scalp.   Get allergy tested and neurological tested and nothing showed up. 

The last few years  I realize the tingling happens when I eat gluten stuff or high amounts of sugar.   My doc said just don’t eat those it’s inflammation.   Not easy to do.  
 

5 months ago I started feeling weird hyper feeling and I was tested with high cortisol.   Not Cushings but high.   
 

I don’t get stomach issues but always tingle in my feet and scalp when I eat gluten.   Drives me nuts.  Seems worse since cortisol is high.   

juwt checking if others have high cortisol from gluten intolerance and if anyone has the tingling thing when eating gluten.    I have a nerve conduction test in two weeks.   
 

thanks.   

[Scott Adams]

Just so I understand, you have not been diagnosed with celiac disease, and include gluten in your diet, is that right?

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

I also had issues with tingling in my scalp which ran from my right neck area along the right-side of my head and across the area above my right ear. I could never figure out why, and even had an MRI at one point which found nothing. When I hit my late 40's I found the answer, in my case anyway--I got shingles and the boils from it broke out exactly where the tingling sensation had been going on for many years. Since that outbreak I've been getting regular shingles vaccines, and haven't had another outbreak, nor have I had the tingling sensation on my scalp.

[trents]

Have you been tested for celiac disease per se? It is not an allergy. It is an autoimmune disorder triggered by the consumption of gluten. Allergy testing cannot be used to diagnose celiac disease. There are specific antibody tests used to diagnose celiac disease.

[Therockfrog]

Hi.   Never been tested.   Don't want to eat gluten as the tingling is so bad when I eat it, I know you need to eat gluten stuff to get tested for it.   I had a burrito yesterday after 3 weeks of not eating any gluten...for some reason I forgot...and my feet and scalp have been tingling ever since....takes 2-3 days to stop.   Happens with nuts too.   Any maybe dairy...but i never drink milk and dont eat cheese very often.  So tired of it, just hard to work at my desk when my feet are tingling all day.   Will talk more with my neuro at the nerve conduction test.

[trents]

Realize that nuts and a lot of other foods can be cross-contaminated with gluten. If you are either gluten intolerant or gluten sensitive you need to work at eliminating major and minor sources of gluten. A classic example of cross contamination would be dried lentils. Testing by celiac watchdog groups has shown that packages of dried lentils contain up to 20% wheat. Things like that are often processed on the same equipment as wheat products. Or things might be grown in the same areas as wheat, or stored in the same silos as wheat or transported in the same trucks, etc. Mainline oatmeal is another good example. And what about restaurants? You order a gluten free menu item but it's cooked on the same surfaces or pans as wheat stuff.