Review after 2 years, alarming high numbers

[Royalred]

Hi everyone 

normally I’m one to browse through these forums without posting however I need some help

My OT was diagnosed with celiac in 21 and the iAg was coming out at 125 iu/ml which I thought was alarming to begin with, fast forward to today when her new results came at 128 iu/ml 

When I be searching through the forums, I’ve never come across such as a high number for the iAg and my question is this very alarming? She tried her best to stick to gluten free, however it isn’t stuck to religiously. 

All the other numbers such as folate and Vitamin b12 are within perfectly safe parameters however the iAg is alarming, she keeps brushing it under the carpet however I’m getting concerned especially with the new results. 

Regarding the stages of Celiac, what stage would those numbers fall into?

Thanks in advance  

 

[trents]

Welcome to the forum, @Royalred!

Forgive my ignorance, but what is an OT? Occupational Therapist?

And what does iAG stand for? This is medical code terminology we are not accustomed to seeing on this forum? Is this the same as TTG-IGA? And the units of measurement "iu/ml" is unfamiliar to me as well. International Units per milliliter? 

At any rate, we would need the negative vs. positive reference range used by the lab to gage whether or not these scores are indeed very high. And were the tests evaluated by the same lab? Each lab develops their own tests and uses their own reference ranges. There aren't industry standards for these things.

Celiac blood antibody scores cannot be used to gauge what stage of the disease a person is in. What can be used for that is the Marsh scale from biopsies of the small bowel lining. Has your OT ever had that done?

[knitty kitty]

Welcome to the forum, @Royalred.

If you're referring to tTg IgA, the test used to look for antigluten antibodies, then recent test results which are the nearly same as when diagnosed would indicate continued gluten consumption, resulting in inflammation due to the antibodies attacking the body in the autoimmune response of Celiac Disease.  

As a general rule of thumb, the higher the tTg IgA antibody levels, the more severe the damage to the intestines. 

She really needs to take the gluten free diet seriously.  Down the road, there's serious health consequences if the gluten free diet isn't followed.  It's preventable damage. Symptoms get worse as one ages and as nutritional deficiencies arise due to malabsorption.  

Hope this helps!

[trents]

"She tried her best to stick to gluten free, however it isn’t stuck to religiously."

This is the problem. What factors are preventing your OT from being consistent?