Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayers needed


Shanon

Recommended Posts

Shanon Newbie

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum @Shanon!

Blood type eating plans have dubious scientific support: 

"A naturopath called Peter D’Adamo popularized the idea that a diet based on blood type could help a person achieve good overall health and reduce the risk of developing certain diseases.

However, research on the effects of a blood type diet is scarce, and the studies available have not proven its effectiveness. For example, the authors of a 2014 studyTrusted Source concluded that their findings did not support the claims that a blood type diet provides specific benefits." https://www.medicalnewstoday.com/articles/319303

Do you see a pattern in the kinds of situations that cause you to fall off the bandwagon? Are you largely asymptomatic when you consume gluten and seem to get away with it at the time?

Scott Adams Grand Master

Welcome to the forum! 

Is there something in particular that makes you fall off the wagon with your gluten-free diet? For example, do you miss a particular food? Does this happen at restaurants, or parties, etc?

Hopefully your family and friends can support you as well.

Shanon Newbie

Some restaurants do not have gluten free items 

 

trents Grand Master
6 minutes ago, Shanon said:

Some restaurants do not have gluten free items 

 

Some foods are naturally gluten free and by the nature of what they are should not suffer from cross contamination. For instance: a hardboiled egg, a baked potato, fresh fruit, steamed broccoli. The lack of a gluten free menu does not equate with lack of gluten free options if you  take this into consideration. Also, you can request from the chef that your food choices be cooked on clean surfaces, clean pots and pans and handled with clean utensils. Explain to the restaurant staff that medically you must avoid gluten. This approach does require extra effort on your part when ordering and a certain amount of assertiveness but it's a matter of taking control of the situation for your own health and safety. Friends, family and coworkers will get used to it after awhile. 

Paula McVicker Rookie
On 6/26/2024 at 2:03 AM, Shanon said:

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 

So you fell off the band wagon - it happens but not because you are weak willed, it's because society does not cater for your needs!

This is where you need to stand up & demand that you are respected, heard & have a right to food that is good for you. Just like everyone else!

Yes we're a minority but it doesn't mean we deserve less.

If an establishment won't accept you as a diner then don't give them your money, time or patronage. Encourage your family & friends to boycott such establishments whether you are with them or not. Maybe then these so called "fine dining for all" /"family friendly" type of places will sit up & take notice!!!

Because we are family & we matter.

Coeliac lives matter!

If my family & friends are out dining without me, as can happen, they always look at the menus, question staff etc to ascertain if it is a place I could be safe & comfortable attending. If not, they let me & the restaurant know of it, & also whether or not they will be dining there again. I think this is great as it is a way of raising awareness. We've had some great discussions with restaurants, & their staff, who are genuinely interested in learning more & how best to adapt to include diners like ourselves. 

If I'm eating out & a restaurant or chef cannot cater for my dietary needs then I don't rate them much. Especially the chefs!!  If a chef cannot make a basic nutritious meal for me then they shouldn't be in a kitchen. Yes we all know how much cheaper & cost effective it is for these establishments to make standard gluten rich food. They have a profit to make. But should this be at the cost of your health?!

I'm the only one amongst my family & friends that is a Coeliac, & I've learned over the years that only those who respect & care about my well being are worth having in my life. Do the same for yourself - develop a strong support system around you. And yes initially they'll be shy about standing up for you in public but with practice they'll feel empowered on your behalf. Strongest allies you'll ever need.

So, don't punish yourself for getting waylaid. Explore why this happens. Put in place alternatives to the way you previously did things. Your life & needs have changed. Adapt & improve them as best you can.

Remember this is your new lifestyle - not a diet in the general sense of the word - but a lifestyle that is going to keep YOU healthy, fit and well & YOU deserve that type of lifestyle 💓 

Good luck on your journey 

  • 2 weeks later...
KathleenMK Rookie

It is hard find gluten-free options that are a as tasty as your old favorites. When you find them ,stock up. We found gluten-free oreos are just as good as the originals. Try to concentrate more of the naturally gluten-free foods which will be those healthier veggies and lean proteins than standard gluten filled starches. I think we are eating healthier in general to fit Hubby's gluten-free diet, but I know those baked goods are so tempting. Best to not have those around if they cause you to cheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748

    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.