Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayers needed


Shanon

Recommended Posts

Shanon Newbie

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum @Shanon!

Blood type eating plans have dubious scientific support: 

"A naturopath called Peter D’Adamo popularized the idea that a diet based on blood type could help a person achieve good overall health and reduce the risk of developing certain diseases.

However, research on the effects of a blood type diet is scarce, and the studies available have not proven its effectiveness. For example, the authors of a 2014 studyTrusted Source concluded that their findings did not support the claims that a blood type diet provides specific benefits." https://www.medicalnewstoday.com/articles/319303

Do you see a pattern in the kinds of situations that cause you to fall off the bandwagon? Are you largely asymptomatic when you consume gluten and seem to get away with it at the time?

Scott Adams Grand Master

Welcome to the forum! 

Is there something in particular that makes you fall off the wagon with your gluten-free diet? For example, do you miss a particular food? Does this happen at restaurants, or parties, etc?

Hopefully your family and friends can support you as well.

Shanon Newbie

Some restaurants do not have gluten free items 

 

trents Grand Master
6 minutes ago, Shanon said:

Some restaurants do not have gluten free items 

 

Some foods are naturally gluten free and by the nature of what they are should not suffer from cross contamination. For instance: a hardboiled egg, a baked potato, fresh fruit, steamed broccoli. The lack of a gluten free menu does not equate with lack of gluten free options if you  take this into consideration. Also, you can request from the chef that your food choices be cooked on clean surfaces, clean pots and pans and handled with clean utensils. Explain to the restaurant staff that medically you must avoid gluten. This approach does require extra effort on your part when ordering and a certain amount of assertiveness but it's a matter of taking control of the situation for your own health and safety. Friends, family and coworkers will get used to it after awhile. 

Paula McVicker Rookie
On 6/26/2024 at 2:03 AM, Shanon said:

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 

So you fell off the band wagon - it happens but not because you are weak willed, it's because society does not cater for your needs!

This is where you need to stand up & demand that you are respected, heard & have a right to food that is good for you. Just like everyone else!

Yes we're a minority but it doesn't mean we deserve less.

If an establishment won't accept you as a diner then don't give them your money, time or patronage. Encourage your family & friends to boycott such establishments whether you are with them or not. Maybe then these so called "fine dining for all" /"family friendly" type of places will sit up & take notice!!!

Because we are family & we matter.

Coeliac lives matter!

If my family & friends are out dining without me, as can happen, they always look at the menus, question staff etc to ascertain if it is a place I could be safe & comfortable attending. If not, they let me & the restaurant know of it, & also whether or not they will be dining there again. I think this is great as it is a way of raising awareness. We've had some great discussions with restaurants, & their staff, who are genuinely interested in learning more & how best to adapt to include diners like ourselves. 

If I'm eating out & a restaurant or chef cannot cater for my dietary needs then I don't rate them much. Especially the chefs!!  If a chef cannot make a basic nutritious meal for me then they shouldn't be in a kitchen. Yes we all know how much cheaper & cost effective it is for these establishments to make standard gluten rich food. They have a profit to make. But should this be at the cost of your health?!

I'm the only one amongst my family & friends that is a Coeliac, & I've learned over the years that only those who respect & care about my well being are worth having in my life. Do the same for yourself - develop a strong support system around you. And yes initially they'll be shy about standing up for you in public but with practice they'll feel empowered on your behalf. Strongest allies you'll ever need.

So, don't punish yourself for getting waylaid. Explore why this happens. Put in place alternatives to the way you previously did things. Your life & needs have changed. Adapt & improve them as best you can.

Remember this is your new lifestyle - not a diet in the general sense of the word - but a lifestyle that is going to keep YOU healthy, fit and well & YOU deserve that type of lifestyle 💓 

Good luck on your journey 

  • 2 weeks later...
KathleenMK Rookie

It is hard find gluten-free options that are a as tasty as your old favorites. When you find them ,stock up. We found gluten-free oreos are just as good as the originals. Try to concentrate more of the naturally gluten-free foods which will be those healthier veggies and lean proteins than standard gluten filled starches. I think we are eating healthier in general to fit Hubby's gluten-free diet, but I know those baked goods are so tempting. Best to not have those around if they cause you to cheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,903
    • Most Online (within 30 mins)
      7,748

    sweetlib3
    Newest Member
    sweetlib3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.