Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayers needed


Shanon

Recommended Posts

Shanon Newbie

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum @Shanon!

Blood type eating plans have dubious scientific support: 

"A naturopath called Peter D’Adamo popularized the idea that a diet based on blood type could help a person achieve good overall health and reduce the risk of developing certain diseases.

However, research on the effects of a blood type diet is scarce, and the studies available have not proven its effectiveness. For example, the authors of a 2014 studyTrusted Source concluded that their findings did not support the claims that a blood type diet provides specific benefits." https://www.medicalnewstoday.com/articles/319303

Do you see a pattern in the kinds of situations that cause you to fall off the bandwagon? Are you largely asymptomatic when you consume gluten and seem to get away with it at the time?

Scott Adams Grand Master

Welcome to the forum! 

Is there something in particular that makes you fall off the wagon with your gluten-free diet? For example, do you miss a particular food? Does this happen at restaurants, or parties, etc?

Hopefully your family and friends can support you as well.

Shanon Newbie

Some restaurants do not have gluten free items 

 

trents Grand Master
6 minutes ago, Shanon said:

Some restaurants do not have gluten free items 

 

Some foods are naturally gluten free and by the nature of what they are should not suffer from cross contamination. For instance: a hardboiled egg, a baked potato, fresh fruit, steamed broccoli. The lack of a gluten free menu does not equate with lack of gluten free options if you  take this into consideration. Also, you can request from the chef that your food choices be cooked on clean surfaces, clean pots and pans and handled with clean utensils. Explain to the restaurant staff that medically you must avoid gluten. This approach does require extra effort on your part when ordering and a certain amount of assertiveness but it's a matter of taking control of the situation for your own health and safety. Friends, family and coworkers will get used to it after awhile. 

Paula McVicker Rookie
On 6/26/2024 at 2:03 AM, Shanon said:

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 

So you fell off the band wagon - it happens but not because you are weak willed, it's because society does not cater for your needs!

This is where you need to stand up & demand that you are respected, heard & have a right to food that is good for you. Just like everyone else!

Yes we're a minority but it doesn't mean we deserve less.

If an establishment won't accept you as a diner then don't give them your money, time or patronage. Encourage your family & friends to boycott such establishments whether you are with them or not. Maybe then these so called "fine dining for all" /"family friendly" type of places will sit up & take notice!!!

Because we are family & we matter.

Coeliac lives matter!

If my family & friends are out dining without me, as can happen, they always look at the menus, question staff etc to ascertain if it is a place I could be safe & comfortable attending. If not, they let me & the restaurant know of it, & also whether or not they will be dining there again. I think this is great as it is a way of raising awareness. We've had some great discussions with restaurants, & their staff, who are genuinely interested in learning more & how best to adapt to include diners like ourselves. 

If I'm eating out & a restaurant or chef cannot cater for my dietary needs then I don't rate them much. Especially the chefs!!  If a chef cannot make a basic nutritious meal for me then they shouldn't be in a kitchen. Yes we all know how much cheaper & cost effective it is for these establishments to make standard gluten rich food. They have a profit to make. But should this be at the cost of your health?!

I'm the only one amongst my family & friends that is a Coeliac, & I've learned over the years that only those who respect & care about my well being are worth having in my life. Do the same for yourself - develop a strong support system around you. And yes initially they'll be shy about standing up for you in public but with practice they'll feel empowered on your behalf. Strongest allies you'll ever need.

So, don't punish yourself for getting waylaid. Explore why this happens. Put in place alternatives to the way you previously did things. Your life & needs have changed. Adapt & improve them as best you can.

Remember this is your new lifestyle - not a diet in the general sense of the word - but a lifestyle that is going to keep YOU healthy, fit and well & YOU deserve that type of lifestyle 💓 

Good luck on your journey 

  • 2 weeks later...
KathleenMK Rookie

It is hard find gluten-free options that are a as tasty as your old favorites. When you find them ,stock up. We found gluten-free oreos are just as good as the originals. Try to concentrate more of the naturally gluten-free foods which will be those healthier veggies and lean proteins than standard gluten filled starches. I think we are eating healthier in general to fit Hubby's gluten-free diet, but I know those baked goods are so tempting. Best to not have those around if they cause you to cheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.