Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prayers needed

Shanon

By Shanon
in Related Issues & Disorders

 Share

Recommended Posts

Shanon Newbie
Shanon
Posted

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum @Shanon!

Blood type eating plans have dubious scientific support: 

"A naturopath called Peter D’Adamo popularized the idea that a diet based on blood type could help a person achieve good overall health and reduce the risk of developing certain diseases.

However, research on the effects of a blood type diet is scarce, and the studies available have not proven its effectiveness. For example, the authors of a 2014 studyTrusted Source concluded that their findings did not support the claims that a blood type diet provides specific benefits." https://www.medicalnewstoday.com/articles/319303

Do you see a pattern in the kinds of situations that cause you to fall off the bandwagon? Are you largely asymptomatic when you consume gluten and seem to get away with it at the time?

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! 

Is there something in particular that makes you fall off the wagon with your gluten-free diet? For example, do you miss a particular food? Does this happen at restaurants, or parties, etc?

Hopefully your family and friends can support you as well.

Shanon Newbie
Shanon
Posted
  • Author

Some restaurants do not have gluten free items 

 

trents Grand Master
trents
Posted
6 minutes ago, Shanon said:

Some restaurants do not have gluten free items 

 

Some foods are naturally gluten free and by the nature of what they are should not suffer from cross contamination. For instance: a hardboiled egg, a baked potato, fresh fruit, steamed broccoli. The lack of a gluten free menu does not equate with lack of gluten free options if you  take this into consideration. Also, you can request from the chef that your food choices be cooked on clean surfaces, clean pots and pans and handled with clean utensils. Explain to the restaurant staff that medically you must avoid gluten. This approach does require extra effort on your part when ordering and a certain amount of assertiveness but it's a matter of taking control of the situation for your own health and safety. Friends, family and coworkers will get used to it after awhile. 

Paula McVicker Rookie
Paula McVicker
Posted
On 6/26/2024 at 2:03 AM, Shanon said:

New at gluten free lifestyle. Prayers needed. Every time I start gluten free I fall off bandwagon. I need to be gluten free for health reasons. And I’m Blood type O. That blood type shouldn’t have gluten 

So you fell off the band wagon - it happens but not because you are weak willed, it's because society does not cater for your needs!

This is where you need to stand up & demand that you are respected, heard & have a right to food that is good for you. Just like everyone else!

Yes we're a minority but it doesn't mean we deserve less.

If an establishment won't accept you as a diner then don't give them your money, time or patronage. Encourage your family & friends to boycott such establishments whether you are with them or not. Maybe then these so called "fine dining for all" /"family friendly" type of places will sit up & take notice!!!

Because we are family & we matter.

Coeliac lives matter!

If my family & friends are out dining without me, as can happen, they always look at the menus, question staff etc to ascertain if it is a place I could be safe & comfortable attending. If not, they let me & the restaurant know of it, & also whether or not they will be dining there again. I think this is great as it is a way of raising awareness. We've had some great discussions with restaurants, & their staff, who are genuinely interested in learning more & how best to adapt to include diners like ourselves. 

If I'm eating out & a restaurant or chef cannot cater for my dietary needs then I don't rate them much. Especially the chefs!!  If a chef cannot make a basic nutritious meal for me then they shouldn't be in a kitchen. Yes we all know how much cheaper & cost effective it is for these establishments to make standard gluten rich food. They have a profit to make. But should this be at the cost of your health?!

I'm the only one amongst my family & friends that is a Coeliac, & I've learned over the years that only those who respect & care about my well being are worth having in my life. Do the same for yourself - develop a strong support system around you. And yes initially they'll be shy about standing up for you in public but with practice they'll feel empowered on your behalf. Strongest allies you'll ever need.

So, don't punish yourself for getting waylaid. Explore why this happens. Put in place alternatives to the way you previously did things. Your life & needs have changed. Adapt & improve them as best you can.

Remember this is your new lifestyle - not a diet in the general sense of the word - but a lifestyle that is going to keep YOU healthy, fit and well & YOU deserve that type of lifestyle 💓 

Good luck on your journey 

  • 2 weeks later...
KathleenMK Rookie
KathleenMK
Posted

It is hard find gluten-free options that are a as tasty as your old favorites. When you find them ,stock up. We found gluten-free oreos are just as good as the originals. Try to concentrate more of the naturally gluten-free foods which will be those healthier veggies and lean proteins than standard gluten filled starches. I think we are eating healthier in general to fit Hubby's gluten-free diet, but I know those baked goods are so tempting. Best to not have those around if they cause you to cheat.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,898
    • Most Online (within 30 mins)
      7,748
    MLucia
    Newest Member
    MLucia
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.