Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughters blood Test and nursing questions


MrsBlangham
Go to solution Solved by Scott Adams,

Recommended Posts

MrsBlangham Newbie

Hi! My daughter was Diagnosed FFT for not gaining weight or height and dropping %iles. She’s 8 months old and our peid ordered the celiac panel to see if it would be the cause. 
 

her results came back:

gliadin demeadated AB IGG - >250

TTG AB  Igg out of range 

And from Google that says most likely celiac.

would I as mother need to go gluten free to help her as I still nurse her frequently.

im also aware ill need to get myself tested, I fearfully went gluten free as soon as her blood test came back (have had gluten 1-2 times only on accident the last 10 days). Would that skew results if I get tested anytime soon? I know I need to eat gluten to get an accurate results for myself 

TIA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Solution
Scott Adams Grand Master

There is currently no evidence suggesting that gluten passes through breast milk in amounts that could trigger celiac disease in a breastfeeding infant. The primary concern for a breastfeeding mother would be her own health and diet, as the primary pathway for gluten to affect a baby with celiac disease is through direct ingestion when the baby starts consuming solid foods containing gluten.

However, some healthcare providers may recommend that a breastfeeding mother goes gluten-free if her infant shows signs of gluten sensitivity or celiac disease, especially to ensure that any potential cross-contamination is minimized and to support the baby's overall well-being.

If you want to go gluten-free that's great, as it will eliminate potential issues with cross-contamination. You could do a gluten challenge later to figure out whether or not you also have celiac disease.

Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy:

Quote

"...in order to properly diagnose celiac disease based on serology and duodenal histology, doctors need patients to be on gluten-containing diets, even if they are causing symptoms, and this is called a "gluten challenge."

  • Eat gluten prior to celiac disease blood tests: The amount and length of time can vary, but is somewhere between 2 slices of wheat bread daily for 6-8 weeks and 1/2 slice of wheat bread or 1 wheat cracker for 12 weeks 12 weeks;
  • Eat gluten prior to the endoscopic biopsy procedure: 2 slices of wheat bread daily for at least 2 weeks;

and this recent study recommends 4-6 slices of wheat bread per day:

 

 

MrsBlangham Newbie

Thank you!

frieze Community Regular

Be aware that all your personal grooming products need to be gluten free.  Abd hers off course 

Russ H Community Regular

It may be worth getting yourself tested for coeliac disease as a 1st degree relative of someone with the condition has an increased chance of having coeliac disease (about 10%).

https://www.coeliac.org.uk/information-and-support/coeliac-disease/about-coeliac-disease/causes/genetics/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to cristiana's topic in Related Issues & Disorders
      28

      Ectopic heartbeats - any relation to digestive issues?

    2. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      26

      Does anyone here also have Afib

    3. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      26

      Does anyone here also have Afib

    4. - thejayland10 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      TTG IgA and IGA elevated mildy

    5. - Idnam replied to cristiana's topic in Related Issues & Disorders
      28

      Ectopic heartbeats - any relation to digestive issues?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,733
    • Most Online (within 30 mins)
      7,748

    sue3780
    Newest Member
    sue3780
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana, Yes, I found high carbohydrate meals would trigger mine as well.  I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine.  Heart palpitations are a symptom of thiamine insufficiency.  Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy.  The more carbs one eats, the more Thiamine is required to process the additional calories.  500 mg more Thiamine is required for every additional one thousand calories.  This is named "High Calorie Malnutrition."  Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy.  Instead to ration out the small supply of thiamine, the additional calories are stored as fat.  It takes less thiamine to burn fat than to burn carbs.    Do read Dr. Lonsdale' article here... Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine.  The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain.  Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins.  It should tell you what form of thiamine is in it.  If it says thiamine mononitrate, you're probably not getting sufficient thiamine.  Thiamine Mononitrate is a form used in vitamin supplements and foods because it is shelf stable.  Shelf stable means it won't break down when exposed to heat and light sitting on a shelf waiting to be bought in a store or warehouse.  It also is very difficult for the body to break it down and utilize it.  Only about thirty percent of the amount of thiamine mononitrate on the label is absorbed.   Do take a look at Dr. Lonsdale and Dr. Marrs' website hormonesmatter.com.  Dr. Lonsdale has done much research on Thiamine.   Keep us posted on your progress!
    • knitty kitty
      @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests  intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream.  This still is not reflective of current stored vitamin levels inside organs.   The genetic MTHFR mutation does occur frequently with Celiac Disease.  Taking the methylated (activated) forms of the B vitamins is necessary.   A good multivitamin may not be sufficient to correct deficiencies.  Malabsorption due to the intestinal damage of Celiac Disease may prolong deficiency states.  Vitamin deficiencies need to be corrected quickly to prevent long-term problems.  Taking a B Complex twice a day increases absorption.  Taking a multivitamin as well is fine as multivitamins usually also contain some necessary minerals.
    • thejayland10
      My TTG IgA and IGA are elevated mildly, right at borderline positive,e but my EMA is negative. All my vitamin levels are normal as well as cbc and metabolic panel. What is the likely cause of this? I have been on gluten-free diet for 15 yrs nearly. 
    • Idnam
      They do work for me. I am feeling much better now that I am watching my histamine intake and only take the DAO once  a day.   I had acid reflux for 12 years and was prescribed PPI's.  which I refused to take. Ranitidine was prescribed as an option that I did use only as and when I had chest pain. They were prescribed for me to reduce the acid in my body.
×
×
  • Create New...