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Any relation

milo2007

By milo2007
in Related Issues & Disorders

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milo2007 Apprentice
milo2007
Posted

Does anyone know if two small cystic lymphangiectasia in the small bowel be related to Celiac 

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RMJ Mentor
RMJ
Posted

Per this article it is possible.  Look under “Etiology.”

Intestinal lymphangiectasia

 

 

milo2007 Apprentice
milo2007
Posted
  • Author

Thank you. I asked the gastroenterologist if it could  be connected but they said no and it was a finding with no significance. My biopsy was neagative and bloods within limits.

Scott Adams Grand Master
Scott Adams
Posted

As @RMJ mentioned, cystic lymphangiectasia in the small bowel can sometimes be associated with celiac disease, although it is relatively uncommon. Celiac disease is an autoimmune disorder where ingestion of gluten leads to damage in the small intestine. This damage can disrupt the lymphatic system within the intestinal walls, potentially leading to conditions like lymphangiectasia. If you have been diagnosed with both celiac disease and cystic lymphangiectasia, it's important to follow a strict gluten-free diet and work closely with your healthcare provider to manage both conditions. 

milo2007 Apprentice
milo2007
Posted
  • Author

Thank you Scott. My tests for celiac disease were negative and also my biopsy from an endoscopy. I lost two stone in weight in a short time. My hair started to fall out. My vitamin D was low at 28. I had an iron transfusion. My stools are all over the place. After my small bowel endoscopy they said that I had some areas of veins that could bleed and also the lymphangiectasia was noticed. I asked what should I do about the lymphangiectasia and was told it was of no clinical significance. I also asked could celiac be further in my intestines and was told nothing is guaranteed apart from taxes and death. I have not eaten gluten well as far as I know for around 6 weeks. Stopped sugar also. Any advice or suggestions would be welcome. 

Scott Adams Grand Master
Scott Adams
Posted

Many of your symptoms do sound like they could be related to untreated celiac disease--feel free to share your blood test results here if you wish to. 

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

milo2007 Apprentice
milo2007
Posted
  • Author
3 hours ago, Scott Adams said:

Many of your symptoms do sound like they could be related to untreated celiac disease--feel free to share your blood test results here if you wish to. 

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

I do not have the blood results but from memory but was told they were within range. When you say untreated celiac disease is the only treatment removal of gluten? I am also having a blood test for. Myasthenia Gravis.  When all my problems started I was also diagnosed with a mass in my mediastinum which appeared to be a thymix cyst. I am paying for a private scan to see if it has grown as it is causing my a problem with swelling in my face and trouble breathing in certain situations. 

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Scott Adams Grand Master
Scott Adams
Posted

If you have celiac disease or non-celiac gluten sensitivity, the only treatment is a gluten-free diet. You've been told that your test results show that you don't have celiac disease, and I was curious about your blood test results because sometimes the results are in a grey area, rather than a black and white yes or no. For example, if the cut off for a positive tTg-IgA celiac test was 9, and you scored 7 or 8, then you might still have an unhealthy autoimmune response to gluten which could be in a pre-celiac disease stage.

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      By knitty kitty · Posted

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    • Jacki Espo
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