Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimoto Thyroidism and Celiac


Shari61

Recommended Posts

Shari61 Newbie

Hello! My name is Shari. I’m 60 yrs old and just diagnosed with Hashimoto.  I’m reading how Celiac, leaky gut and hashimoto are connected.  I’m removing gluten from my diet to see how I feel, and finding out that I feel much better without gluten, and really sick when I slip.  I’m trying to learn what I can, since my first face to face with doctor is in October.  Way to long to wait for information I need now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Welcome to the forum! Have you thought about getting tested for celiac disease before you go gluten-free? I ask this because you can only be screened for it while you are on a regular gluten diet. 

Shari61 Newbie

I haven’t had the test, but I’ve already tried removing breads and pasta’s so far.  I feel better having just eggs in the morning instead of a bagel or English muffin.  I actually find it holds me over until I get back home from work.  I don’t snack anymore.  But last Sunday , I ate Salmon with pasta and spinach.  Of course, I couldn’t help myself when they brought out the bread with seasoned olive oil.  I’ve been out a whole week from work with severe stomach issues.  I’d go to work if there was a bathroom I could get to fast, but being a Rural Postal driver, bathrooms are scarce. 🙃

Scott Adams Grand Master

So it sounds like you would prefer to self-diagnose rather than to get tested, which would require you to eat gluten daily for 6-8 weeks. 

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Shari61 Newbie

Probably, since I keep missing several days to a week for just eating gluten at one meal. Even though the meal had two gluten items.  I just don’t want the explosive bathroom trips and the stomach cramps and pain.  Plus feeling off balanced again.  If my doctor says I have to, then I’ll consider it after the holidays. 

Scott Adams Grand Master

In case you'd like to read more on Hashimoto's and celiac disease we have many articles in this category:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ 

Wheatwacked Veteran

Overall, the available evidence suggests that vitamin D supplementation may have beneficial immunomodulatory effects in HT patients Impact of Vitamin D on Immunopathology of Hashimoto’s Thyroiditis: From Theory to Practice

Vitamin D deficiency is very common in Celiac Disease.

The Iodine & Hashimoto’s Question  "I recommend keeping dietary and supplemental iodine intake between 150 and 450mcg daily."

When we were kids in the sixties iodine was used as a dough conditioner.  That meant every slice of bread had about 100 mcg of iodine.  Since 1970 the intake of iodine in the US has dropped by 50%.  

Quote

Recent surveys, however, have indicated that the proportion of the U.S. population with low urinary iodine levels is increasing. Although median values of urinary iodine in the U.S. population indicated adequate intake in the United States, the median decreased more than 50 percent between the first National Health and Nutrition Examination Survey (NHANES I, 1971-74) and NHANES III (1988-94). This reduction may be due, in part, to changes in food production.

Iodine Level, United States, 2000

I take 10,000 IU a day to keep my vitamin D level at 80 ng/ml (200 nmol/L) the normal level for 25(ohD)  in humans, since 2015.  

The safe range of iodine in the US is 150 to 1100 mcg a day.  In Japan it is 150 to 3000 mcg.  Note that traditional Japanese have younger skin, hair.  The Japanese students started testing smarter than US kids in the 1980's.

I take 500 to 1500 a day of Liquid Iodine.  Hair, nails, muscle tone, brain clarity, and the blindness in my right eye is recovering and a sebaceous cyst the has not been healing since 2014 is finally healing.  My daughter in law says her 650 mcg in her expresso every morning has made her skin softer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PamandMoose Newbie

I am age 66. Did not know I had Hashimotos until thyroid cancer DX, and removal of thyroid. That was age 30!!!!  (approx... can't do the math right now!)  Was then DX Celiac Disease only 2 years ago!!!! Age 64.  Doctors just did not talk about Celiac back then, and it has done major damage to my body (bone density, anemia). Please stay on top of both thyroid & possible Celiac issues. In my experience, doctors do not regular do testing for Celiac. And true DX requires an endoscopy/biopsy. I seriously hope you do not have Celiac as it is much more of a lifestyle change as is Hashimotos.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    3. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

    4. - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,402
    • Most Online (within 30 mins)
      7,748

    alanhlam
    Newest Member
    alanhlam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.