Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What what your ttg levels when diagnosed?

holl4088
 Share

Recommended Posts

holl4088 Newbie
holl4088
Posted

Hi all,

 

I know this seems like a weird question to ask but to explain. I'm currently waiting for my biopsy results back to confirm everything and my ttg levels from the blood test were high enough I've not seen anyone be close. I just want to know if mine are wildly high or if I'm not alone.

 

My ttg level is 4301 btw... no I didn't miss a decimal 😅

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, @holl4088! Was this the ttg-IGA test score? Different labs uses different scales to score celiac antibody tests and different units of measurement might also be used. The tests aren't standardized so it would be helpful if you would post the range for negative vs. positive for the test used by the lab who analyzed it. There is only a very short time window for editing posts so your will likely have to provide the info in a new post.

holl4088 Newbie
holl4088
Posted
  • Author
9 hours ago, trents said:

Welcome to the forum, @holl4088! Was this the ttg-IGA test score? Different labs uses different scales to score celiac antibody tests and different units of measurement might also be used. The tests aren't standardized so it would be helpful if you would post the range for negative vs. positive for the test used by the lab who analyzed it. There is only a very short time window for editing posts so your will likely have to provide the info in a new post.

Hi, the reference range was anything less than 20 U is normal. My ttg iga levels were 4301.

Raquel2021 Collaborator
Raquel2021
Posted

Mine were 215 . The lab I visited said anything above 12 was a positive for celiac.

trents Grand Master
trents
Posted
8 hours ago, holl4088 said:

Hi, the reference range was anything less than 20 U is normal. My ttg iga levels were 4301.

That's the highest ttg-IGA value I have ever encountered and I've been participating on this forum for many years. Tell us more about what led you to get tested. What symptoms were you experiencing? With those high ttg-iga numbers I would expect your small bowel lining to be pretty well trashed unless your celiac disease is of very recent onset.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748
    Emily Ekanger
    Newest Member
    Emily Ekanger
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long?   Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos.  From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from May to September, but then, finally, the weight returned again, in the run up to Christmas 2013.  The loss after I gave up gluten was, I think, in part because in those early months I didn't know what I was allowed to eat, so wasn't eating very much.  But the good news is the weight in the end returned so successfully that I'm actually on a diet now, trying to lose it!😊   It can be scary losing a lot of weight when you are trying not to, but the advice above is great, and before long you should start to put on the weight again.  It might be worth keeping a food diary to see what healthy calorie rich food you can tolerate, and try to incorporate more of that into your diet at this time.  
    • Scott Adams
      How long does it take to gain weight?

      By Scott Adams · Posted

      First, it's fantastic news that your diarrhea has resolved after a month—that is a huge and critical sign of healing, confirming that the gluten-free diet is starting to work. While it feels slow, this stabilization of your digestive system is the essential foundation upon which weight gain is built. Given the severity of your weight loss, dropping from 50kg to 35kg, it is very normal for the body to need a significant amount of time to recover. The fact that your vitamin levels are stable is a positive sign that your body is now absorbing nutrients, which is the first step. Many people in the Celiac community report that noticeable, consistent weight gain often doesn't begin until several months after their digestive symptoms have fully settled, as the intestines need that time to repair the villi responsible for absorption. It sounds like you are doing everything right by working with your specialists and ruling out other issues like thyroid complications, which, despite the fluctuating TSH, your doctors have confirmed are not a primary concern. Please be gentle with yourself; your body has been through a major trauma. The lack of strength you feel is a direct result of such a low body weight, and as you slowly and consistently nourish yourself with safe, calorie-dense gluten-free foods, that strength will return. Stay the course with your optimism and consistency—you are on the right path, and a healthier figure is absolutely ahead. Are you taking vitamin and mineral supplements? The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.    
    • knitty kitty
      How long does it take to gain weight?

      By knitty kitty · Posted

      Yes, I agree, most doctors miss the subtleties of Celiac disease.   The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne.  Her book The Paleo Approach is most helpful.   The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track.  It eliminates processed gluten-free foods.  These processed foods are not enriched with vitamins and minerals like their gluten containing counterparts are.  They are usually full of saturated fats and excess fiber, not something healthy one would choose to eat anyway.  Stick with meat and veggies and some low histamine fruits.  Supplement with Benfotiamine and a B Complex to ensure your body has an opportunity to absorb these essential nutrients. You have a blessed day, too, sweetie.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.