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What what your ttg levels when diagnosed?

holl4088
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holl4088 Newbie
holl4088
Posted

Hi all,

 

I know this seems like a weird question to ask but to explain. I'm currently waiting for my biopsy results back to confirm everything and my ttg levels from the blood test were high enough I've not seen anyone be close. I just want to know if mine are wildly high or if I'm not alone.

 

My ttg level is 4301 btw... no I didn't miss a decimal 😅

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trents Grand Master
trents
Posted

Welcome to the forum, @holl4088! Was this the ttg-IGA test score? Different labs uses different scales to score celiac antibody tests and different units of measurement might also be used. The tests aren't standardized so it would be helpful if you would post the range for negative vs. positive for the test used by the lab who analyzed it. There is only a very short time window for editing posts so your will likely have to provide the info in a new post.

holl4088 Newbie
holl4088
Posted
  • Author
9 hours ago, trents said:

Welcome to the forum, @holl4088! Was this the ttg-IGA test score? Different labs uses different scales to score celiac antibody tests and different units of measurement might also be used. The tests aren't standardized so it would be helpful if you would post the range for negative vs. positive for the test used by the lab who analyzed it. There is only a very short time window for editing posts so your will likely have to provide the info in a new post.

Hi, the reference range was anything less than 20 U is normal. My ttg iga levels were 4301.

Raquel2021 Collaborator
Raquel2021
Posted

Mine were 215 . The lab I visited said anything above 12 was a positive for celiac.

trents Grand Master
trents
Posted
8 hours ago, holl4088 said:

Hi, the reference range was anything less than 20 U is normal. My ttg iga levels were 4301.

That's the highest ttg-IGA value I have ever encountered and I've been participating on this forum for many years. Tell us more about what led you to get tested. What symptoms were you experiencing? With those high ttg-iga numbers I would expect your small bowel lining to be pretty well trashed unless your celiac disease is of very recent onset.

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