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Newly diagnosed Celiac


Aussie Celiac

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Aussie Celiac Newbie

Well at the ripe old age of 55 I'm newly diagnosed as Celiac. What a surprise.  I was low in iron and this was the only symptom. Well I did get heartburn after eating bread but according to all sources this isn't officially a symptom! Better late than never lol. 


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trents Grand Master

Welcome to this online community and to the celiac nation, @Aussie Celiac! Let us know if we can help you with anything as you start the journey. By the way, we have forum participants who weren't diagnosed until they were in their 80s. It is often the case that the actual onset of the condition precedes the official diagnosis by many years, especially when symptoms are minimal. I was 50-51 when I was diagnosed but looking back I had laboratory evidence of the onset preceding the diagnosis by 13 years. It probably took years for your celiac nutrient malabsorption to deplete your iron stores such that nothing was left in the bank and your actual hemoglobin levels began to drop.

Scott Adams Grand Master

Welcome, and heartburn is a symptom, along with ~200 other symptoms, but many celiacs have no symptoms, however, this does not mean that their health is not at risk should they keep eating gluten--the health risks are the same to all celiacs, regardless of whether or not they have symptoms.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

knitty kitty Grand Master

Welcome to the tribe, @Aussie Celiac

How are you progressing?  Are your iron levels getting better?

Aussie Celiac Newbie

Hi there, I haven't been back for another blood test. I had an iron infusion awhile ago and feel a bit better. It's only quite recent so hopefully things will improve. 

Peace lily Explorer

Welcome to the forem

i got diagnosed in march with cealiac it’s been a process for me

 I’m strictly gluten free . I went years with suffering with the pain . Don’t want to go thru with that again if I can help it but I found you really have to read the labels on food products . I had a nutritionist for awhile and helped me get thru this who new soy sauce has gluten in it.

plus this forem helps a lot you will get a lot of knowledge.

good luck

peace lily

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    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
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