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My 5 months of Struggle

Art Maltman
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Art Maltman Newbie
Art Maltman
Posted

About 5 Months ago I got a little bit sick and since then I have been having trouble focusing, rembering, thinking thought through, having pressure on my head and even just talking to friends normaly has become a challange. I also have been having yellowish poops. My father was has celiac but I am not sure if thats what is causeing my problems becasue I dont have any abdomnial pain like him. i have also tried going gluten free for a week with no results, but maybe i just need to try for longer. I have gone to doctors but they haven't had really any ideas as to whats wrong with me they just say it could be anything and try this drug maybe it will work. I really am tired of feeling terrible all the time and if any one knows if these symptoms are common to celiac or has any other ideas whats wrong with me please let me know.

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Art Maltman Newbie
Art Maltman
Posted
  • Author

Also been very fatigued

trents Grand Master
trents
Posted
(edited)

Welcome to the forum, @Art Maltman!

Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:

 

The physician may not be open to ordering a full panel but push for at least these two:

total IGA and tTG-IGA.

By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 

Edited by trents
Art Maltman Newbie
Art Maltman
Posted
  • Author

I did a test already not exactly sure if it was the right one the doctor I went to at first refused to give me the test but i evantail convinced him but he wasnt exactly sure what test to do. I didn't eat gluten on sunduy monday tuesday and i had the test on thursday. Is it possible the test will still be accuret

trents Grand Master
trents
Posted
(edited)

Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive.

What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.

Edited by trents
Art Maltman Newbie
Art Maltman
Posted
  • Author

Thank you. I am in manhatten so there a lot of doctors I can see. I went to a neroligist and he just told me im depressed which im not and now i am going to go to a gut doctor to see if the 2 things might be realated.

C:\Users\aryeh\Downloads\IMG_1049.jpg

 

JA917 Rookie
JA917
Posted
2 hours ago, Art Maltman said:

Thank you. I am in manhatten so there a lot of doctors I can see. I went to a neroligist and he just told me im depressed which im not and now i am going to go to a gut doctor to see if the 2 things might be realated.

C:\Users\aryeh\Downloads\IMG_1049.jpg

 

I'm new here so I'm not sure if I'm allowed to recommend doctors?  But I am in Manhattan and see Dr. Lauren Schwartz at Manhattan Gastroenterology.  I am still in the process of (potentially) being diagnosed and she has been wonderful.  She has experience in Celiac and has a very calming bedside manner.  I feel confident I'll get the right diagnosis with her.  Give her a try if she takes your insurance.  Good luck!

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