Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

High Liver Enzymes


dana-g

Recommended Posts

dana-g Newbie

My last bloodwork showed that I had elevated liver enzymes (pre my celiac disease diagnosis) and I've since read that that is actually one of the signs of celiac disease. I'm having more bloodwork done next week and I'm hoping it will be normal...but I'm wondering if anyone out there has had a similar experience. I'm concerned because I know liver disease is one of the lovely bonus gifts we are at risk for as celiacs and I wasn't diagnosed celiac disease til I had suffered for most of my 46 years. On the up side, it led us to test our kids, and our 11-year old daughter turned out to have celiac disease, and she's doing well on the diet and feels great! So we nipped that timebomb in the bud! Any insights would be helpful since I am fairly freaking out, which is uncharacteristic for me, but I think the magnitude of this disease is finally hitting me. It ain't no Richard Simmon's Deal-a-Meal! Thanks you guys.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lauderdalehawk44 Apprentice

I actually passed out in school one day and in the ER they drew blood whole nine yards and the only thing they found was high liver enzymes. Few months later i was always having stomach pain so went to a new doctor did cat scan and blood work and blood work came back as me showing celiac sprue in the blood. I asked him about my liver enzymes and he said that he was not 100% sure but it could have been the celiac disease all along. Don't know if that helps lol B)

lauderdalehawk44 Apprentice

p.s. good to hear your daughter is doing good. After i was diagnosed my aunt had my cousin tested and found she has it as well and she's about your daughters age so good thing for both of them :)

dana-g Newbie

Thanks! That definately helps...sounds like you had a time of it, though. Hope you are doing well, too. This is one sneaky disease.

debimashni Newbie

I was actually diagnosed with Celiac Disease after I was admitted to the hospital with liver enzymes (ALT & AST) in the 800s....normal is under 45. My doctors are not sure if the elevation was from the Celiac Disease, or caused by one of the immunosuppressant meds I take for Behcet's Disease (another autoimmune disease), or even from a virus. Luckily, my husband is a nurse practitioner so he draws my labs on a regular basis. I also have urine dipsticks that check for bilirubin in my urine that I use if I notice my urine is dark. Last time I used one and found moderate levels of bilirubin, my husband checked my labs and sure enough, my liver enzymes were elevated again. I just switched to a new immunosuppressant drug to see if my meds caused the problem.

  • 5 weeks later...
Alison Rookie

Yes, high liver enzymes are related to celiac disease -- this has been confirmed to me by doctors who know about celiac. Mine were high, as were several celiacs that I have talked to. The numbers fell into the normal range once going gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.