NCGS Diagnosis

[PA Painter]

Hi

Celiac has been ruled out with a biopsy. I am so sensitive that I cannot eat most processed food. One bite sends me into three to five days of a disabling shoulder, neck, headache, stabbing & burning toes, ankles, knuckles, and wrists. I finally discovered that a whole food and gluten free approach has given much needed relief after years of agony. My nerves can finally repair  without the threat of inflaming over and over any more. The cognitive symptoms I have experienced are frightening to say the least. This is totally reproducible with food that has residual wheat on it much less actually eat wheat directly. They don't even know if this is caused by gluten. My reaction is innate only. I get barely any stomach problems, only hot snakes and acid reflux. I think this may be a direct cause of long term GMO sheet IDK. I can't touch it and am not celiac. I wish I had a forum.😞

[Scott Adams]

It sounds like you're dealing with a severe non-celiac gluten sensitivity (NCGS) that significantly impacts your neurological and musculoskeletal systems, despite testing negative for celiac disease. Your sensitivity is so pronounced that even trace amounts of wheat trigger debilitating symptoms, including nerve pain, cognitive issues, and inflammation. Adopting a strict whole-food, gluten-free diet has been crucial for your recovery, allowing your nerves to heal. While the exact cause remains unclear (whether it's gluten, GMOs, or another component in processed foods), your reproducible reactions confirm a real and innate intolerance. It’s frustrating that NCGS is poorly understood, and having a supportive forum to share experiences would likely help. Your relief underscores the importance of dietary vigilance, even without a celiac diagnosis.

[PA Painter]

That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement.

[Scott Adams]

Just so you know GliadinX is not supposed to be used in place of a gluten-free diet, and may only be able to break down small amounts of gluten in the stomach. Small amounts might mean some wheat bread crumbs on your scrambled eggs at a restaurant. I'm not sure how your taking it, but I can say that I used to get glutened ~30% of the time when eating out, but now if I take a couple of GliadinX shortly before I eat a restaurant meal I no longer have issues, even though I suspect that the cross-contamination issues are likely still present in the restaurants I'm at. It won't work with large amounts of gluten, which they disclose on their website--and full disclosure, they are a sponsor here, but that is not why I'm responding.