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any advice would be helpful

Jane07
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Jane07 Enthusiast
Jane07
Posted

i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time.

i must be doing something wrong im still not in the normal range.

What advice would anyone give?

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RMJ Mentor
RMJ
Posted

Were the two tests done by the same lab? Do the tests have the same normal ranges?  Each test manufacturer uses their own system of units when reporting results.

Have your results gone down at all since diagnosis? 

Are you sure you’re gluten free? Do you eat at restaurants? I would recommend that you take a really good look at your gluten free diet.

It took six years for me to get all my results down to the normal range (I was originally positive for TTG IgA, TTG IgG, DGP IgA, DGP IgG and EMA). I started just avoiding wheat, rye and barley.  My results came down but one was still high.  Then I made sure any processed foods were labeled gluten free.  My results came down more but one was stubbornly positive.  Then I would only eat processed foods if certified gluten free or from a manufacturer with an excellent reputation among those with celiac disease.  All my results were finally normal.

My results went back up a little when I started doing a lot of baking with a reputable but not certified gluten free flour.  When I switched to certified gluten free flour my results went back down to normal.

 

Jane07 Enthusiast
Jane07
Posted
  • Author

they gone down alot since my diagnosis .  the ttg test was done in a hospital

it still not in the normal range 2 yrs later. the last time went up by the one before a little.

maybe it just takes more time really trying to be careful

i need to look at everything i eat to make sure 

knitty kitty Grand Master
knitty kitty
Posted

@Jane07, welcome to the forum!

Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients is common in Celiac Disease.  Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery.  

Vitamin D is frequently low.  Vitamin D helps regulate the immune system and calm it down.  The eight essential B vitamins help repair and maintain our body's health.  Magnesium, calcium, zinc and other minerals are necessary, too.  Vitamin C helps, as well.  Benfotiamine, A form of Thiamine, has been shown to promote intestinal healing.

Are you still consuming dairy?  Eliminating dairy may bring some improvements.  Have you tried the low histamine Autoimmune Protocol diet?  Developed by a Celiac, Dr. Sarah Ballantyne, the AIP diet can improve symptoms while healing.  

Jane07 Enthusiast
Jane07
Posted
  • Author

im do have low zinc and iron i know.

thanks for the feedback.

maybe i should be off dairy i feel i need dairy for calcium 

im also a vegetarian. 

knitty kitty Grand Master
knitty kitty
Posted

There's a Vegetarian version of the Autoimmune Protocol Diet.

There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu.  Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need.  Getting dietary advice is part of proper follow up care for people with Celiac disease.

tTg testing is used for diagnostic purposes.  It should not be used to signify compliance or healing.  

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