Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help figuring out stomach pain


lizzie42

Recommended Posts

lizzie42 Apprentice

Hi,

My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone? 

We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day. 

We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit, veggies, meat, etc. we don't do a lot of processed food. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@lizzie42,

How are your daughter's bowel movements?  Does she have gas, diarrhea or constipation?  Does her squeezing feeling move around in her abdomen or is it consistently in one spot?  Is she dehydrated?

How much fruit does she eat?  Fruit juices?

I'd recommend cutting out the cheese for a while, till you get it sorted.

lizzie42 Apprentice

Her poop is totally normal since going gluten free. Once or twice per day.  She eats a lot of fruits and veggies. No juice. She said the squeezing is in the spot where her food goes in her belly. Definitely not dehydrated. She drinks tons of water. 

knitty kitty Grand Master

Seems like you've been exploring all the possibilities.  Good job!   

Fructose Malabsorption might cause intestinal discomfort. You might cut back on fruit for a bit.   Gastroparesis can cause squeezing contractions randomly.  Thiamine and the B vitamins would help.

Has your daughter been checked for vitamin deficiencies?  Is she taking any vitamin supplements?   The B vitamins are mostly found in meats and liver.  Increasing B vitamins may help.  

Continue keeping track of her symptoms.  Keep us posted on your progress!

lizzie42 Apprentice

Thanks! She was taking iron and vitamin d. Iron has improved so I took her off that (that was not the source of the pain). Vitamin d was low also pre diagnosis but we didn't check b. She has blood work due at the end of the month so I can add vitamin b. She is on a meat kick right now so eating beef regularly. 

knitty kitty Grand Master

We tend to crave foods that our bodies know contain the nutrients it needs.  Her "meat kick" sounds like she's listening to her body's nutritional needs!

Yes, do talk to her doctor and nutritionist about supplementing with a B Complex.  

Well done!

lizzie42 Apprentice

Do you think a children's multivitamin might help? I just ordered the probiotic and also multi from hiya. I'm usually not into the multivitamin as my kids eat really healthy but maybe for the ones with celiac? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

A multivitamin is great.  Multivitamins contain lots of trace minerals we need.  My only hesitation is that many use thiamine mononitrate which is not easily absorbed nor utilized by the human body.  Thiamine mononitrate is used because it's cheap and shelf stable.  You can add in a thiamine hydrochloride or a Benfotiamine supplement in addition to the multivitamin.  

I would give a multivitamin to all the kids.  Even the ones without triggered celiac disease.  Kids do a lot of growing, even into their early twenties, and need plentiful B vitamins.  The gluten free diet can be low in the B vitamins.  The B vitamins are water soluble and easily excreted in urine if not needed.  The Recommended Daily Allowance numbers are based on minimums needed to prevent illness.  Amounts for optimal health are higher.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.