Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New issue


Jmartes71

Recommended Posts

Jmartes71 Explorer

Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the cause, " depression " which medical has caused me.Why is it so hard for medical to believe. I went to ER Dec 23 per pcp and got blood drawn sick as hell looking like a corpse bride with dark circles and pale skin.No surprise they said my blood is fine and I had to say thats not what im here for because im always told its fine when not, Ketones waked and then they said I have the flu, ya the flu 24/7 for years battling what the heck is going on.Doctors really need to listen, understand celiac which I've tried to school in past from what I've learned on these websites but it feels as if running in a useless circle. Im to take gabapentin 300. for a week and then go up to 600 since taking this and a other med that was prescribed no longer taking because it makes me awake.This one too is amping me up to not be sleepy when I am tired. Just curious if meningioma or ms is a link to core issue of celiac?I also saw the proclamation but confused because it states that California has two women?  Do I reach out to them? Ive already wrote to my local representative in Stanislaus County.Being celiac and dealing with a circus of clowns that didn't diagnose one doesn't make celiac go away and its not fair or right to us.Im angery, diagnosed by gi doctor by biopsy before foods eliminated from my diet, celiac sprue at the age of 23 in 1994.Now menopause has killed any tolerance i had and body affected badly.No one should go through the medical HELL ive been through. 

Also positive HLA-DQ2 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

    2. - trents replied to Bogger's topic in Related Issues & Disorders
      1

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      29

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,080
    • Most Online (within 30 mins)
      7,748

    GlutenFreeChef
    Newest Member
    GlutenFreeChef
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
    • trents
      Fosamax is a first generation "bone rebuilder" and I have heard there are newer and better things on the market now. I assume Reclast falls in the second category and gets better reviews according to this website: https://www.drugs.com/compare/fosamax-vs-reclast I think some bone rebuilding can happen when a celiac faithfully begins to practice gluten free eating. How much may depend on a number of factors, not the least of which may be the person's age. May we ask how old you are? Gender may also play a part. What are your reservations concerning Reclast as opposed to Fosamax? And does Reclast pose less risk for bleeds/ulcers than Fosamax? I was diagnosed with celiac disease at age 50 and DEXA scans done at that time showed osteopenia. I am male and 74 years of age. I was on Fosamax for a while but discontinued it. I don't remember why I stopped but it may have been because of GERD. I have not had a DEXA scan follow-up so I can't say for sure whether or not going gluten free at age 50 resulted in any recoup of bone density. But, I have had numerous Xrays of this and that body part over the years since then and no doctor has commented on low bone density showing up in the Xrays. Of course, an Xray is not a DEXA scan but I think in a crude way they can reveal bone density because of how bright the bones appear on a Xray. And in around 25 years I have not had any fractures so I think that may say something. Here's an important question with regard to bone health: Are you on a PPI for GERD?
    • Charlie1946
      @trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years 
    • trents
      @Charlie1946, what are you taking omeprazole for and how long have you been on it?
    • Charlie1946
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.