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gluten-free For 2 Years And Sick Again

LAUSTIN

By LAUSTIN
in Coping with Celiac Disease

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LAUSTIN Newbie
LAUSTIN
Posted

I've been gluten-free for 2 years and was doing very good. My only flare up was when we evacuated for Katrina in Aug. That was understandable. But now I have been sick for 3 days and I don't know what's caused it. So far no diarrehea, but bloating big time and chills (no fever). I have developed a nasty NON itchy rash on my legs. that my Dr. just looked at and said dry skin! I have had numbness and tingling in my legs and arms for 2 years (diagnosed as nerve damage from celiac disease). I'm afraid these may be signs of diabetes. I've lost a lot of faith in doctors. Has anyone gone through something similar?

laustin

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Carriefaith Enthusiast
Carriefaith
Posted

Have you tried any new products or ate at any restaurants?

LAUSTIN Newbie
LAUSTIN
Posted
  • Author
Have you tried any new products or ate at any restaurants?

I have racked my brain. The only thing new is cottage cheese, which I was assured gluten-free. I stopped eating it 2 days ago. just in case. I was wondering (sounds crazy) if certain pollen could carry gluten. We are having a lot of willow seeds and stuff floating around. Thanks Carrie for responding

I have racked my brain. The only thing new is cottage cheese, which I was assured gluten-free. I stopped eating it 2 days ago. just in case. I was wondering (sounds crazy) if certain pollen could carry gluten. We are having a lot of willow seeds and stuff floating around. Thanks Carrie for responding
Guest nini
Guest nini
Posted

keep in mind that products that you've always used and know to be safe MAY all of a sudden change their ingredients and now contain gluten. So, I try to make it a habit to always read labels every single time, even if I've used the product a hundred times already. Just recently it was a brand of taquitos that I've eaten with no problems in the past, and was just getting ready to say "ok" when I remembere to read the label, sure enough, wheat was one of the ingredients... and it said "contains wheat ingredients" on the bottom... I can't remember what brand, but I've had them before with no probs at all after finding them on a gluten-free list somewhere.

LAUSTIN Newbie
LAUSTIN
Posted
  • Author

Thanks Nini,

You are probably right. I try to keep up on the labels but sometimes you have to be a chemist to read them.

laustin

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      Shingles - Could It Be Related to Gluten/ Celiac

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      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
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      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      GI DX celiac despite neg serology and no biopsy

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      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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