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Just Diagnosed With Celiac

odcdinah

By odcdinah
in Coping with Celiac Disease

Recommended Posts

odcdinah Contributor
odcdinah
Posted

Hi everyone,

I've just been diagnosed with celiac and feel completely overwhelmed, so I'm glad to see this board.

I'd like to know how long it took folks to start feeling better after beginning a gluten-free diet?? Thanks!

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RoseNNJ Apprentice
RoseNNJ
Posted

Welcome! Theres a lot of great people here with tons of support. I think everyone is different in how long it takes to feel better. I have been gluten-free since January. I no longer have to run to the bathroom. I hope you feel better soon :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have been gluten free since Oct 2005. It took a while to be able to digest even the simpliest of foods. I think everyone is different. The one thing that this board helped me get thru and remind me time after time, is that it does get better. It may take some time.. but you will feel better.

Welcome! Any questions you may have, just post them here and they will be answered. The people here are great!

Tinkerbell

kessea Newbie
kessea
Posted

Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

francelajoie Explorer
francelajoie
Posted
Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

carriecraig Enthusiast
carriecraig
Posted

Hi and welcome to you too! It is very overwhelming at first, and this messageboard can help answer a lot of your questions.

I started feeling better after a couple of months on the gluten-free diet. I'd say by a year, I will be completely healed, and feeling like I did before my Celiac diagnosis.

Rusla Enthusiast
Rusla
Posted

Welcome to the board. I have been gluten-free since Nov 28,2005 and without this board I don't know how I would have ever survived. We are like one extended family, so like a family sometimes we debate things and have different opinions. However, we all basically get along and you can learn more here than anywhere else. There are no stupid questions here. Everyone has different lengths of time it takes them to get better. So although some things changed within the first week for me there are still things that are not all super duper. I certainly know when I have been glutened and I can tell within five minutes.

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KaitiUSA Enthusiast
KaitiUSA
Posted

Hang in there guys...it does get easier. Things won't tempt you as much and you will know what to look for as time goes on. It becomes like a natural part of life for you and you will learn there is so much we can still hanve and good replacements for the stuff we can't have. Email me if you need any help at all.

kessea Newbie
kessea
Posted
There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

whew! thanks for the info and i will search the board!

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  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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