Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Good - Still Having Problems


VAGuy

Recommended Posts

VAGuy Apprentice

Hello everybody, thought I'd run this past you folks.

gluten-free since November

EnteroLab advised me to go gluten-free, and avoid dairy, eggs, and yeast in April

and that I did not have colitis

Had been dairy free for a while before that

Have found that only minimal amounts of corn products can be tolerated

Can tolerate only minimal fiber

Why does sugar trash my digestive system? If between meals I have a little Jello, Tang, 100% fruit juice, etc. I'm running for the bathroom a few hours later. A little Smucker's Blueberry Syrup (corn syrup/sugar) kills me.

I can have 2/3 banana @ dinner with say 3 med. strwberries, and 1/2 tablespoon All Fruit (9g sugar per tablespoon) on a 3g of sugar waffle (waffle is desert) and do OK, and maybe a couple sips of apricot nectar later, but otherwise I've found it best if I just avoid sugar/sweet items.

Any thoughts would be appreciated. I have a appt. 7/7/04 with a GI to finally talk about this and am really trying to get things mapped out/organized before I see him. If I can get a line on sugar woes, the only thing left on my list is to determine whether it is spaghetti sauce that bothers, or the soy flour in the pasta I'm using.

Thanks, Phil

P.S. Depending on where you live you'll understand when I say am I glad the Brood X cicadas are beginning to die off, enough is enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Phil, I am sorry you are still having a tough time, :( I am too, to a point. ;) I hope we BOTH feel better soon! I do not have a problem with sugar or fruit, but I don't eat a lot of fruit just in case, but I can eat Jello without a problem.

I looked around the web and found this article about IBS and Sugar, I know you don't have IBS but thought I would pass it on anyway:

Open Original Shared Link

I hope this is helpful to you and if not maybe someone else will be along shortly to help you out...... good luck and feel better!!! :D

travelthomas Apprentice

Hi Phil,

I did notice when I first went gluten-free that I was running to the bathroom to urinate all the time. By asking questions on this board I found out it was certain fruits that caused the problem. Processed fruits will exaggerate the problem. Try eliminating all fruit from your diet, and then slowly add it back in one at a time. The culprit will stand out like a sore thumb.

VAGuy Apprentice

Thanks for your replies - one more piece of the puzzle I guess, a little more info to take to the Doc - maybe I can sneak a couple strawberries with dinner rather than on an empty stomach, homegrown taste so good. I have been tryign to avoid corn syrup for a while and it helps, can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

Thanks again

Phil

RojSpencer Newbie
can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

I haven't found a BBQ sauce that doesn't have viniger in it yet? Are you sure it is safe? Only Heinze ketchup also (has distilled viniger), not Hunts.

If you're still gettting a steady stream of gluten, even if in traces, it will prevent your recovery.

tarnalberry Community Regular

Most bbq sauces have cider vinegar, like the only gluten-free one I've found (I haven't looked hard, I'm sure there are plenty of others) - Bone Suckin' Sauce.

But, even if it had grain vinegar, unless something is added after the distillation process (which would make it something other than plain vinegar), there is no gluten in distilled grain vinegar. The molecular weight of gluten is far too heavy to allow it to pass through the process of distillation. There's been a lot of research on this, and the recent stuff has made a nearly completely closed case on ths issue. (Heh... about as much as you can do to prove something is positive. ;-) )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748

    Hcon74
    Newest Member
    Hcon74
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.