Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge


Ursa Major

Recommended Posts

Ursa Major Collaborator

Well, I am seeing a dermatologist on May 1st, hoping that I would be diagnosed with DH by skin biopsy, in the process getting a firm diagnosis of celiac disease, that will hold up anywhere.

So, for four days I ate two slices of rye bread, or yesterday, I ate two waffles for breakfast. I weighed myself today, and in those four days I've gained EIGHT pounds! My joints are aching, my hands are stiff and swollen, my eyes are tearing, I have acid reflux and heartburn, my knees buckle going down the stairs, I'm itching all over, I have a stomach ache, chest pains, clumsiness, I'm irritable....................lots of symptoms I had BEFORE going on the gluten free diet. And I was steadily losing weight as well.

Even though I am getting rashes (which was the point), everything else just isn't worth it. Seeing all those problems coming back is confirmation enough for me, even if the rashes all go away before seeing the doctor. Especially the weight gain is the clincher. NO WAY will I risk gaining back all the weight I've lost!

Strangely, I appear to be back where I was before getting so sick with chronic diarrhea last May (which lasted until October, at which point I went gluten-free). I am constipated more than anything, no D at all. I guess I've healed enough to not have the 'classical' symptoms any more when consuming gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mmaccartney Explorer

I understand, I'm not willing to do that at this point, nor do I think I could last long enough for a gluten challange to be effective. I'd probably drop out after 1-2 days...

Is there any hope that your Dr can squeeze you in now??? Explain to them what you've been going through, and how important it is to you. If they can understand that you are literally killing yourself in order to be in a "testable" state when you see them, perhaps they can make some time for you now???

Ursa Major Collaborator

Michael, to get a specialist appointment here in Canada as fast as I did seems like a miracle as it is, its not likely I'd have any chance of seeing him earlier. Plus, I don't think I have a blister at this point that would work. The only one I got was right on my nose, and I popped it! Other than that, it's just things like pimples, hives etc. at this point (and the back of my head feels like I have lice again, even though I know I don't, it freaks me out though).

I might get some nasty looking ones even if I stop eating gluten, as those things are often quite delayed anyway.

Another thing is, that we're going to Vancouver from May 6th to 14th (from us, a five hour plane ride west). A business trip for my husband, but hopefully fun for Susie (our youngest daughter, 14) and me, as we will be visiting relatives there we've never had a chance to visit before. I don't want to look like a freak!

Thanks for the support, though, I appreciate it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,051
    • Most Online (within 30 mins)
      7,748

    levizagepro
    Newest Member
    levizagepro
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...