Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain, But Not Gluten


sspitzer5

Recommended Posts

sspitzer5 Apprentice

Hi,

I've been gluten free for a little over a year. Occasionally, I get major abdominal pain that is not related to gluten (as far as I can tell - no diaherra or other typical gluten symptoms). The pain isn't from gas or bloating either. It feels almost like a cramp or as I've described it before, "like I'm digesting a piece of glass". Ouch. Anyway, my lower back and my hip joints ache badly when this happens. It only seems to happen every few months and lasts 2 to 3 hours. I was thinking it had something to do with digesting hard to digest stuff like steak, but now I'm not so sure because I didn't eat anything like that lately and have had major pain today.

Anyone have any ideas as to what this might be?

Thanks!

S


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I get that kind of pain, although in my case, it's only my stomach that hurts. It feels like my stomach is trying to eat itself. It's awful and lasts at least a full day. I don't get D, but I'll usually throw up. Bentyl helps sometimes, but usually it takes at least 2 doses of phenergan to get rid of it totally.

The doctors are dumbfounded as to why, but my doctor said it was pyloric spasms, like getting a charley horse in your stomach muscle.

I've noticed the last 2 times I got glutened, I got the pain a few days later, totally seperate from any other gluten symptoms. I don't know if they're necessarily related, though. There seems to be no rhyme or reason to it.

Guest Robbin

Are you female? If so, it might be ovarian related. Or, it could be another food intolerance. I am finding out not only gluten, but corn and tapioca is getting to me. Same kind of pain-feels like glass going through the digestive tract. Then, I feel "flu-ey" and get the big D. Hope you get to the bottom of it.

sspitzer5 Apprentice

Thanks for the replies! It doesn't seem to correspond with my cycle, seems more digestive in nature, but it's hard to tell for sure.

S

julie5914 Contributor

I get that too. I think mine is either acid or a medication I've taken (like if I take some cold meds that have ibuprofen). Feels like something is cutting into my stomach.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,551
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...