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JenAnderson

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JenAnderson Rookie
JenAnderson
Posted

What is Enterolab and why does it seem like that is the gold standard in testing? What do they do when they test? I have taken a blood test that came back inconclusive and had a "Biopsy", but the gastro that I saw said that he didn't see any scarring. I've had an appendectomy a few months ago and the surgeon said that I needed to be retested because from the state of my appendix, I could have been having problems with that all along. Can anyone help me? I have been gluten-free since Jan 04 and I have no idea what to do with all this new info.

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cornbread Explorer
cornbread
Posted

Go to their web site and read read read - lots of great info there. :)

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tiffjake Enthusiast
tiffjake
Posted

I had testing done there (EnteroLab) because I didn't want to go through my doc. After doing several tests (Lame Advertisement, EnteroLab, and gluten free diet and then challenge) I went to my doc for the blood tests. I didn't want to get the discouraging comments that I have seen on here that so many people get from non-believing docs. That was my experience. Good luck! I hope you find what you are looking for!

mmaccartney Explorer
mmaccartney
Posted

the "gold standard" is positive serology with positive intestinal biopsy. These methods are extermely old, and as we celiacs know, they are not that accurate unless your disease is progressed!

Enterolab is appealing to many as 1) it is non invasive, 2) it does NOT require you to ingest gluten for testing purposes.

The issues are that the testing is not standardized nor has it been put through a peer review. Many doctors don't see them as legitimate.

I made the choice to use them. My serology was funny, my biopsy negative. But then my disease was only active for about 1.5 yrs. If I continued on and got tested after a year or two, the results surely would have been different. So, I ended up going with Enterolab (my ins actually paid!!) and I got the results I knew I would get.

JenAnderson Rookie
JenAnderson
Posted
  • Author

Well I've called my insurance company and since it's not a military physician or facility, the military won't cover it (Go Figure) Ah well.

mmaccartney Explorer
mmaccartney
Posted

Bummer! I know nothing about military insurance. I would ask them if the military provides this type of testing, and if a military doctor ordered it, would it still be covered??? I woul expect that if a doctor in their plan ordered the test, it wouldn't matter what lab it came from!

My insurance company told me that they would *not* cover the testing. They wouldn't consider it "medically necesary" unless a doctor ordered it.

I wanted the testing, so I put up the $390 to have it done. Just for kicks I got a claim form and sent it to my insurance company. Surprise! they paid it! I am still shocked......

I am having my kids tested. Just to be safe I'm trying to ge their pediatrician to "order" the tests so that if the ins denies it I can appeal and get payment...

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      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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