Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Symptoms But Can Eat Certain Kinds Of Wheat


enortham

Recommended Posts

enortham Newbie

I've noticed that I have all the symptoms of celiac disease whenever I eat white bread, certain whole wheat breads, and maybe even some white cheeses. The symptoms tend to show up a half hour after eating. What's strange is that I eat shredded wheat for breakfast all the time, oatmeal frequently and pepperidge farm's german dark wheat bread with no problems.

Has anyone else experienced trouble with specific types of wheat? I think it may have to do with processed foods, or some other ingredient that's thrown in.

I once saw a allergist to determine whether I was allergic to wheat and the test came back negative. After reading through some of the other messages and the FAQ it looks like I should probably see a GI doctor.

Does anyone have any recommendations, advice, or similar experiences?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalo Rookie

I would do a search for enterolabs. They have a VERY RELIABLE stool test to see if you are gluten intolerant. I am waiting for my test to come so I can find out for myself. Gluten intolerance (celiac disease) is a lot more common than most doctors think. Does any one in your family have intestinal problems? Anyways the stool test is the best. Keep us posted. Carol B

Guest jhmom

Hi enortham:

I would react quickly to some things, like within 30min to an hour but other things it would take up to 10 hours (overnight) but it was usually the same reaction (cramps, abdominal pain and diarrhea).

Some items would send me straight to the bathroom such as salads with crouton (I always thought it was the "greens" but it wasn't), french fries with certain spices on them (particularly Outback Steakhouse's). Then other times it took a little longer (like when I had a burger or sandwich with white bread) the cramps and diarrhea would always hit me the next morning.

I did eventually learn to stay away from the things that I had an immediate reaction to but it did not fix my problem. But once I was gluten-free I could tell a HUGE difference, I did not live with the daily abdominal pain that once had me doubled over, practically in tears.

I suggest you see a GI doc that knows about Celiac and if you still do not get answers you are comfortable with try the gluten-free diet for a couple of months to see if you improve.

I hope this makes some sense :P and is helpful to you in some way :D

Guest jhmom

I wanted to add this too....... lol

Yes Carol is right, if you want a doctors diagnosis then you could always try Open Original Shared Link, this is how I was dx, along with many people from this site. It is a simple stool panel test which is more sensitive than blood and more accurate than standard blood test that doctors use.

I hope you feel better soon!

VAGuy Apprentice

Hello enortham - just before I went gluten-free I had whittled down my list of foods and was doing some better but not great. I seemed to do okay with Harris Tetter Toasting bread, shortbread cookies, HT turnovers did not bother as much as Safeway ones, hamburger buns weren't too bad, others. But yeasty breads and rolls bothered a whole lot.

After I went gluten-free I was doing better, but the breads I were eating still seemed to bother me.

The explanation came in my results from Enterolab (which I received on April 1st

and now refer to as the "April Fool's Day Massacre"). Along with wheat I am also sensitive to eggs, dairy, and yeast - thats why the gluten-free breads were bothering me, and those ingredients can be present in various levels in different baked goods.

If you do go gluten-free you might want to keep this in mind:

A common ingredient in commercial gluten-free baked goods is GUAR GUM - it is high in fiber, used in some laxatives, and the stuff kills me. Just a little in BBQ sauce seems okay, but watch out for it.

I think the whole panel of tests cost $536.00 from Enterolab; it was worth it because for me I think yeast was as much a problem as wheat. EX. I can eat Louis Rich Turkey bacon and do fine, ButterBall turkey bacon bothers, when I read the ButterBall label it listed "autolyzed yeast" I think it was.

Good luck - and this is a great site, it's helped me immensely.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.