Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need A Biopsy?


deena647

Recommended Posts

deena647 Apprentice

Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome, Deena,

I am certainly not an expert on the blood tests--there are several. I was diagnosed by a biopsy almost six years ago. In those years, the blood tests have improved and it is now possible to make a clinical diagnosis based upon the results from a combination of tests for antibodies. I don't know the specifics, but I'm sure someone on here will step forward with them. A positive biopsy for damage to the villi is conclusive, but may not be necessary.

Search this board for Iga and Igg tests and you may find the answer, assuming you know which tests were run and what the results were.

Whether it is a wheat allergy, or celiac, you will find lots of help on here about following a wheat- and gluten-free diet.

MySuicidalTurtle Enthusiast

I only had a blood test but my brother had both to become diagnosed Celiacs.

ravenwoodglass Mentor
Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena

If your doctor is satisfied with the diagnosis without putting you through the endo be thankful. Just make sure you avoid topical glutens as well as foods, check you toiletries, shampoos, lipsticks et al. The folks here are wonderfully helpful and welcome to the family.

fastcatkerry Newbie

How do they perform the biopsy for Celiac? My doctor has told me I have DH and now is talking about doing a biopsy to test further. Is it similar to a colonoskopy?

KaitiUSA Enthusiast

Biopsies can only rule celiac in but not out so if it comes back negative you may still have celiac.

There is a full celiac panel that should be run and it is very accurate:

EMA

IgG

IgA

tTG

Total Serum IgA

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...