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Do I Need A Biopsy?

deena647

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deena647 Apprentice
deena647
Posted

Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena

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psawyer Proficient
psawyer
Posted

Welcome, Deena,

I am certainly not an expert on the blood tests--there are several. I was diagnosed by a biopsy almost six years ago. In those years, the blood tests have improved and it is now possible to make a clinical diagnosis based upon the results from a combination of tests for antibodies. I don't know the specifics, but I'm sure someone on here will step forward with them. A positive biopsy for damage to the villi is conclusive, but may not be necessary.

Search this board for Iga and Igg tests and you may find the answer, assuming you know which tests were run and what the results were.

Whether it is a wheat allergy, or celiac, you will find lots of help on here about following a wheat- and gluten-free diet.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I only had a blood test but my brother had both to become diagnosed Celiacs.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena

If your doctor is satisfied with the diagnosis without putting you through the endo be thankful. Just make sure you avoid topical glutens as well as foods, check you toiletries, shampoos, lipsticks et al. The folks here are wonderfully helpful and welcome to the family.

fastcatkerry Newbie
fastcatkerry
Posted

How do they perform the biopsy for Celiac? My doctor has told me I have DH and now is talking about doing a biopsy to test further. Is it similar to a colonoskopy?

KaitiUSA Enthusiast
KaitiUSA
Posted

Biopsies can only rule celiac in but not out so if it comes back negative you may still have celiac.

There is a full celiac panel that should be run and it is very accurate:

EMA

IgG

IgA

tTG

Total Serum IgA

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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