Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Add In Children-anyone See A Difference Going gluten-free?


Guest momx3

Recommended Posts

Guest momx3

My 10yo son was diagnosed in kindergarten with ADD. He exhibits all of the classic symptoms of ADD-inability to sit still, lack of concentration/focus, etc-but he also exhibits many of the celiac disease symptoms. Just today, he was in agony all day and vomited this afternoon after eating soy sauce last night. He often has leg cramps, he's short & skinny for his age, often has stomach troubles (which I have often attributed to his ADD meds). We're in the process of screening my 13mo old son for celiac disease and have been reading a little about the connection between ADD & celiac disease & it just all made sense....

Does anyone have experience with ADD and a gluten-free diet? Have you noticed a decrease in symptoms?

Thanks! Kate


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
My 10yo son was diagnosed in kindergarten with ADD. He exhibits all of the classic symptoms of ADD-inability to sit still, lack of concentration/focus, etc-but he also exhibits many of the celiac disease symptoms. Just today, he was in agony all day and vomited this afternoon after eating soy sauce last night. He often has leg cramps, he's short & skinny for his age, often has stomach troubles (which I have often attributed to his ADD meds). We're in the process of screening my 13mo old son for celiac disease and have been reading a little about the connection between ADD & celiac disease & it just all made sense....

Does anyone have experience with ADD and a gluten-free diet? Have you noticed a decrease in symptoms?

Thanks! Kate

My dd does not have ADD but I can honestly tell you that at 15 months of age, I was TERRIFIED that she'd have it as she already exhibited the symptoms. We were never officially diagnosed with Celiac either but rather, had implemented a gluten-free diet just prior to seeing our GI specialist (didn't know we weren't "supposed" to do that). The change in behavior was the FIRST drastic change we noticed. In 24 hours, our dd could sit still and concentrate and in 3 days, her verbal skills jumped through the roof! Diarrhea cleared up in 3-4 days and appetite increased drastically from that point on and she began gaining weight.

I should also mention that certain other foods ended up coming out of her diet as well. She still reacts to all forms of dairy, artificial sweeteners, food colorings (especially yellow #5, red #33 and #40) and to certain amounts of soy and even eggs (doesn't react if they are baked in a recipe though). I guess what I am saying is that sometimes removing gluten just isn't enough and you have to experiment a bit to see what is working. The best thing you can do is monitor behavior, progress and symptoms in a food journal. By keeping track of things that way, you will find it to be much easier to pinpoint problematic foods. HTH

sarahjo Newbie

we thought that our 2 year old might have it, but when she is milk, wheat, gluten free she improves dramatically. the medicines for add have nasty side effects. there alot of books that explain the relationship between the diet and add/adhd. to be honest i wouldn't give my kid the medicine before trying the diet. you need to do what is best for you and your child. but research the connection between the 2. good luck, let me know.

lonewolf Collaborator

My 11 yo son's teacher suggested he be tested for ADD earlier this school year. I took him to the pediatrician, asked about Celiac (he tested negative) and other food issues. He's already off milk and has been since about 13 months old. The pediatrician suggested going wheat free, no matter what the tests showed. I had him go gluten-free and he has done well. His teacher no longer thinks he needs to be tested. He still sometimes "zones out", but is a LOT better.

DonnaD Apprentice
My 11 yo son's teacher suggested he be tested for ADD earlier this school year. I took him to the pediatrician, asked about Celiac (he tested negative) and other food issues. He's already off milk and has been since about 13 months old. The pediatrician suggested going wheat free, no matter what the tests showed. I had him go gluten-free and he has done well. His teacher no longer thinks he needs to be tested. He still sometimes "zones out", but is a LOT better.

Plse see Open Original Shared Link where I have just posted re this subject and my daughter.

Sorry rushing to go out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    2. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.