Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im gluten-free - Have I Messed Up Test Results?


sarahm19

Recommended Posts

sarahm19 Newbie

Hi everyone!!! I'm in the process of trying to get diagnosed with Celiacs. Blood tests came back negative but I have like ALL of the symptoms plus several autoimmune diseases. So 2 months ago, I cut out all gluten. Since then ive had drastically less tummy probs. Still have some but a LOT less. But my doctor still wants to do a sigmoidoscopy in attempt to see whats wrong with me (i tried to get him to do an endoscopy or biopsy but he said a sigmoidoscopy is good enough).

But will my results on the sigmoidoscopy be messed up because I've been eating gluten free?

Its scheduled for June 6th. Should i go back to eating gluten for a while? (I dont think so cause it will hurt me. I just dont know what to do). Any advice? Thanks sooooo much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

Celiac damage occurs in the small intestine, not the large intestine. Either your dr. doesn't know what he is talking about, or he has no intention of looking for celiac.

He must be looking for Chron's, it has a lot of similar symptoms to celiac. I've read gluten-free also helps Chron's.

mommida Enthusiast

The testing for Celiac is looking for damage caused by your ingestion of gluten. You have definately skewed the testing.

L.

Lisa Mentor

My adivse to you would be to go on a totally gluten diet and request that your doctor do an endoscopy exam of your small intestines. By the time it is scedules, it could take up top three weeks and you can consume your full share of gluten, which may result in a positive result from the exams.

If you feel better on the gluten free diet, well, just continue. I was feeling so bad that I felt that I had to go to a GI specialist, as I was concerned about cancer and had no knowlege about Celiac.

It all depends if you want a dx. I would suggest that you go as there are other concerns with intestinal malfunctions other than Celiac. Check that out and being dx with Celiac is truley a blessing in discuise.

Good luck and keep us posted. Lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.