Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Extremities And Joint Pain?


hapi2bgf

Recommended Posts

hapi2bgf Contributor

I woke up Monday morning with hands and feet seriously swollen and serious joint pain. I can't get my rings off and it is causing concern. The swelling has not gone done - if anything it has gotten a little worse. My wrists, shoulders, and knees are killing me. I can't close my hands due to the swelling.

Is this a Celiac reaction to gluten?? Does anyone else get this? How do I make the swelling go down? It is painful and Tylenol is not helping much.

I ate nothing questionable so I am at a loss as to what is going on.

Any help or advice would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

I have never heard of a reaction like that due to Celiac.

You need to call your doctor immediately!!!!!

dana-g Newbie

You do need to call your doctor, but I want to tell you that I had the same problem before I stopped eating gluten, especially after I was particularly active. It even happened if I used my hands a lot, like if I did an intensive art project or decorated a cake or something like that--my hands and wrists would balloon up and be very painful. I had to stop wearing my wedding ring. Please call your doctor, though, because it could be related to your blood pressure or some other problem and could be more serious than a gluten reaction. Let us know!

plantime Contributor

See your doctor as soon as possible. That kind of swelling is sometimes indicative of serious problems. The sooner you know what caused it, the sooner you can do something about it.

angel-jd1 Community Regular

CALL THE DOCTOR!! I agrree with everyone else. There are some serious conditions that have that symptom(Lupus, another autoimmune disease), and you really shouldn't be waiting around to see what happens. Get to the doctor as soon as you can. Swelling is your body's way of letting you know something is going on and you need to listen to your body.

-Jessica :rolleyes:

hapi2bgf Contributor

Thanks for the quick replies. After spending so many years jumping to go to a doctor looking for an answer to my problems, Celiacs, I am now very hesitant to go to a doctor - feeling like I have become a hypochondriac :P

I did make it to the doctor yetserday. It seems we have Fifths Disease running around my area and the doctor thinks that is what I have. It is typically a disease you get during childhood, but very bad if you are pregnant. We checked and I am not pregnant. In theory, this should go away by the end of the week. If it does not, I will be getting all kinds of blood tests to find out what else it could be. You've mentioned a few good options like Lupus that I would prefer not to have thought about, but better to know the possibilities.

Thanks!

lbaroosh Newbie

Have you had your thyroid Checked?

You Should


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
dempscd Newbie

I too have swollen hands. Diagnosed Oct. '03 with celiac disease and have been on a gluten free diet. So far have had negative results from rheumatoid arthritis test. Also have gained a lot of weight but am not retaining water.

  • 2 weeks later...
hapi2bgf Contributor

Dempscd,

Well I am over the Fifth's Disease thing. My daughter and every child and parent that we were in contact with got sick with Fifth's. Nasty little disease since you are contageous when you don't know you are sick.

My hands still swell up in the mornings, but nothing like when I was sick. And my hands still ache at times. I'm tempted to go back to the doctor to have him run a few tests, just to be sure. Turning on and off faucets nearly kills me, so I leave leaking fauctes all over the house - not good. This is all new since I got sick with Fifth's which makes me wonder if something else is going on too.

A lot of people seem to think the swelling could be signs of some other diseases, so you might want to get checked out further. Ticks are a serious problem around my area, one of the little buggers just gave me a painful bite the other day. So I think that is one of the things I will need checked.

Good luck and post if you find an answer to the swelling.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    2. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748

    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  One of the symptoms of Thiamine deficiency is difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD symptoms as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.