Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Extremities And Joint Pain?


hapi2bgf

Recommended Posts

hapi2bgf Contributor

I woke up Monday morning with hands and feet seriously swollen and serious joint pain. I can't get my rings off and it is causing concern. The swelling has not gone done - if anything it has gotten a little worse. My wrists, shoulders, and knees are killing me. I can't close my hands due to the swelling.

Is this a Celiac reaction to gluten?? Does anyone else get this? How do I make the swelling go down? It is painful and Tylenol is not helping much.

I ate nothing questionable so I am at a loss as to what is going on.

Any help or advice would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

I have never heard of a reaction like that due to Celiac.

You need to call your doctor immediately!!!!!

dana-g Newbie

You do need to call your doctor, but I want to tell you that I had the same problem before I stopped eating gluten, especially after I was particularly active. It even happened if I used my hands a lot, like if I did an intensive art project or decorated a cake or something like that--my hands and wrists would balloon up and be very painful. I had to stop wearing my wedding ring. Please call your doctor, though, because it could be related to your blood pressure or some other problem and could be more serious than a gluten reaction. Let us know!

plantime Contributor

See your doctor as soon as possible. That kind of swelling is sometimes indicative of serious problems. The sooner you know what caused it, the sooner you can do something about it.

angel-jd1 Community Regular

CALL THE DOCTOR!! I agrree with everyone else. There are some serious conditions that have that symptom(Lupus, another autoimmune disease), and you really shouldn't be waiting around to see what happens. Get to the doctor as soon as you can. Swelling is your body's way of letting you know something is going on and you need to listen to your body.

-Jessica :rolleyes:

hapi2bgf Contributor

Thanks for the quick replies. After spending so many years jumping to go to a doctor looking for an answer to my problems, Celiacs, I am now very hesitant to go to a doctor - feeling like I have become a hypochondriac :P

I did make it to the doctor yetserday. It seems we have Fifths Disease running around my area and the doctor thinks that is what I have. It is typically a disease you get during childhood, but very bad if you are pregnant. We checked and I am not pregnant. In theory, this should go away by the end of the week. If it does not, I will be getting all kinds of blood tests to find out what else it could be. You've mentioned a few good options like Lupus that I would prefer not to have thought about, but better to know the possibilities.

Thanks!

lbaroosh Newbie

Have you had your thyroid Checked?

You Should


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
dempscd Newbie

I too have swollen hands. Diagnosed Oct. '03 with celiac disease and have been on a gluten free diet. So far have had negative results from rheumatoid arthritis test. Also have gained a lot of weight but am not retaining water.

  • 2 weeks later...
hapi2bgf Contributor

Dempscd,

Well I am over the Fifth's Disease thing. My daughter and every child and parent that we were in contact with got sick with Fifth's. Nasty little disease since you are contageous when you don't know you are sick.

My hands still swell up in the mornings, but nothing like when I was sick. And my hands still ache at times. I'm tempted to go back to the doctor to have him run a few tests, just to be sure. Turning on and off faucets nearly kills me, so I leave leaking fauctes all over the house - not good. This is all new since I got sick with Fifth's which makes me wonder if something else is going on too.

A lot of people seem to think the swelling could be signs of some other diseases, so you might want to get checked out further. Ticks are a serious problem around my area, one of the little buggers just gave me a painful bite the other day. So I think that is one of the things I will need checked.

Good luck and post if you find an answer to the swelling.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.