Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Off Of Gluten Free Diet


Susan123

Recommended Posts

plantime Contributor

Testing can be a :bbbb! I hope that they are able to learn something from your tests. It would really be nice for you to have something definitive to go by. Good luck with it, and don't forget to keep us posted! Thanks for the link, I will check it out when I have more time!

  • 7 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



uafnanook2001 Newbie

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

kareng Grand Master

The last post on this thread was over 7 years ago. I doubt any of the posters are still active on this forum.

GFinDC Veteran

I have been reading this post with interest. Almost 4 years ago, I wasn't feeling right and I went lactose free. I was better but since having two relatives with confirmed celiac disease, I thought I would eliminate wheat, as well. For 3 yrs I was gluten-free/LF. Last summer (of 2011) I reintroduced lactose into my system. I have been fine. I am now wanting to slowly reintroduce gluten as I realize it was dumb of me to go 100% gluten-free for no real good reason. I had the saliva test for the celiac gene (I don't have it) and had some type of blood test (the Dr. said that it was negative, as well). I have the same symptoms now that I had 4 yrs ago and I'm thinking it was just the lactose bothering me mildly. I know that if I go 100% back onto gluten, of course I'll have problems. I'm just wondering if anybody knows how slowly I would need to reintroduce it. Take something like a dinner roll and eat 1/8 or 1/4 teaspoon size of it every day for two weeks and then on the 3rd week, eat 1/4 to 1/2 teaspoon for two weeks etc? Or, is that unrealistically too slow? If I at all redevelop symptoms, I will quit the gluten. I just need to know, though, for sure in my own mind, if it's a wheat sensitivity or not.

Hi Uafnanook,

What you are considering is called a gluten challenge. That's when you have been gluten-free for a while and then try gluten again. It is a pretty good diagnostic tool. I think it would be best to start slow the first couple of days. Keep a journal of your food you are eating and how you feel each day. To be sure you are reacting or not reacting to gluten, don't eat anything out of the ordinary during the challenge except the gluten. A good test would be to eat regular wheat bread for a few days. No pizza or anything else, just wheat bread. The fewer variables in your diet the easier it is to identify the culprit. After a week of no changes except for adding wheat bread to your diet, there should be some noticeable changes in your symptoms if you are having a reaction. Remember that symptoms are not confined to digestive issues. You could have nerve symptoms, bone or joint pain, headaches rashes or other symptoms instead. Or your you may grow horns. Ok, kidding on the last one about the horns. :D But if that does happen be sure to tell us about it :)

TJSpin Rookie

Susan,

Just curious....after your guten sensitivity test at Enterolab, was the malabsorption test the next in line for your celiac diagnosis? Did you consider the stool test for transglutaminase? My 6 year old just got her gluten sensitivity test back and I want to test for celiac but do not want the biopsy for her. Based on your experience with Enterolab, would you recommend the malabsorption over the transglutaminase test?

Susan:

I was tested through Enterolab and my test results were positive for "gluten sensitivity", I also tested positive for "malabsorption due to small intestinal damage".

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,637
    • Most Online (within 30 mins)
      7,748

    Sarahaaa
    Newest Member
    Sarahaaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.