Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Everyone


J-DUB

Recommended Posts

J-DUB Newbie

I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Elizabeth19
I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

I WAS JUST DIAGNOSED LIKE A MONTH AGO AND IM 18 AND ITS SORTA DIFFICULT AT TIMES.

PS- GO PISTONS

Lisa Mentor

Hey John, good to meet you----

We all have alot of ups and down as we travel through Celiacland. Since you have been gluten free for ll years, I would suggest that you get a full blood work-up to see where you are are regards to your nutrients in and out of your body.

And are you taking in as many calories as you are burning. When your body tells you to slow down, it's telling you something. Look into that.

If you have other questions there are a bunch of people her that most likely will have the answer for you.

Lisa

KaitiUSA Enthusiast

Welcome to the board....if you have any questions let me know...I am here to help:)

inquirer Newbie

Have you had your thyroid checked?

J-DUB Newbie

I never had that tested...What will it detect and what kind of test is it?

inquirer Newbie

It's a blood test that will check for thyroid hormones. Celiacs suffer from autoimmune diseases and hypothyroid is very common. Some symptoms are lack of energy, intolerance to cold, brittle hair, etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Becka85 Newbie

I'm 20 and I've been having the same kind of problem as you. I can sleep for 12-14 hours and still be exhausted a couple of hours after getting up. I have no energy to do anything and no appetite so I have to force myself to eat full meals. I've had this off and on for about a year and I think it may be due to hidden gluten in my diet. I've been rotating my diet to prevent further intolerances from developing but I think there is gluten in one of the new products I tried. I went back to eating food that I knew was 100% safe and I feel much better. It takes a few days to get your energy back though. Have you changed your diet recently? Or are the ingredients different in a product that you've been eating for awhile?

J-DUB Newbie

I'm always lookin for new foods to try or new ways to cook different things so maybe something new I tried had something in it. I'm extremely cautious when I try new foods but have been surprised before. The crazy thing is that I've been gluten free for 11 years and never had a reaction like this (if what I'm experiencing is from gluten).

sandeehier Newbie

Maybe if the tests don't cost too much, or if your insurance will pay for them, you could get a blood test for hypothyroid AND to check for gliadin antibodies, to see if you've been exposed to hidden gluten.

Good luck and I hope you feel better!

loraleena Contributor

Hi welcome. I suggest you get your thryoid checked also. Make sure they don't just do tsh(it is extremelyinaccurate) There is a whole panel that should include T3, T3 free, T4 free, thyroglobulin antibodies, and thyroperoxidase antibodies (these show hashimotos). Also you should get your adrenals tested as well. Also I would look into hypoglycemia. If you eat lots of carbs your blood sugar could be crashing and causing fatigue. Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.