Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shampoos/conditioners

Donna F

Recommended Posts

Donna F Enthusiast
Donna F
Posted

Okay, I've heard someone here say that L'Oreal shampoo is okay.

Today I bought Vive - Smooth-Intense Shampoo and Conditioner (seperate bottles)

There is no contact info on the bottle - only a website with no way to contact them or FAQs.

Is this stuff okay? The longer I've been on the diet, the more sensative I've become.

Otherwise, I need some names of manufacturers of gluten-free shampoos and conditioner - especially conditioner. My product listing has NONE! I won't be able to comb my hair anymore (it's getting longer) - and it's growing (NO, i will NOT cut it!)so it'll only get worse.

thanks!

donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lisabarella Apprentice
lisabarella
Posted

This is what they told me...

Basically NOTHING. Doesn't help. But here is the number. Stick with Nutrogena.

June 15, 2004

Thank you for visiting L'Or

Donna F Enthusiast
Donna F
Posted
  • Author

Thanks Lisa,

I'll call them on Monday.

There is something wrong with the Neutrogena for me - I can't use it.

Neutrogena also put out a statement that they don't guarantee their products are gluten-free any more and to use with caution. Since they give me a reaction - I don't use them anymore.

Guess I'm stuck with Toms (yuck! - smelly!)

-donna

terri Contributor
terri
Posted

I went round and round with them and finally they said that the Color Vive was gluten-free but not necessarily the other Vive shampoos. So, be sure to double check. I talked to Garnier Fructus and they said ALL their products are gluten free. So, they are a pretty safe bet. I think the Dove Products are okay. At least the color treated ones are. Someone said Pantene is also gluten free but I haven't personally checked them.

Terri

dana-g Newbie
dana-g
Posted

I am ultra-sensitive to gluten in shampoo and I use Pantene with no trouble.

Donna F Enthusiast
Donna F
Posted
  • Author

That's a relief. I didn't know there were so many gluten-free ones out there.

I'm glad I won't have to shave my head :o

Thanks!

:D donna

  • 2 weeks later...
terri Contributor
terri
Posted

Here is the response I got from Pantene. I think it should be fine, don't you?

(My question)

Are your products gluten and wheat free? I need to know before I purchase any...

Discussion Thread

---------------------------------------------------------------

Response (Monika) - 07/02/2004 02:21 PM

Thanks for contacting Pantene, Terri.

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

I hope this response has been helpful to you. For more information about Celiac, you may want to check out Open Original Shared Link and Open Original Shared Link

Thanks for getting in touch with us.

Monika

Beauty Care Team

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dana-g Newbie
dana-g
Posted

It's called "Passing the Buck". If Pantene adds a fragrance that contains gluten to its product, I think they are morally bound to inform their consumers. It shouldn't matter if they are the source of the gluten-containing ingredient or not! I personally react quite violently to "hydrolyzed wheat protein" applied to my scalp--burning, itching, etc. I'm not so much worried about ingesting the shampoo since I don't shower with my mouth open! I don't want to take a chance that an undeclared source of gluten will spark a reaction. I do, however, use Pantene with no trouble.

Donna F Enthusiast
Donna F
Posted
  • Author

I agree, it does sound like passing the buck.

I've been using Pantene for a few weeks now and I've not had a problem. No more Neutrogena for me! I'm fairly certain Pantene IS okay since I seem to be really sensitive now and I have no problem with it.

thanks for telling me!

-donna

Guest Lindam
Guest Lindam
Posted

:) I have not had any problems using Dove shampoo and conditioners. I have had excellent luck with Johnson's Baby shampoo also. I can't believe how many items out there have gluten in them. I just went to the beauty salon yesterday and they only had one shampoo that they could use on me. All the salon products have some sort of wheat and/or oats in them.

Good Luck

Linda

terri Contributor
terri
Posted

Lindam I called Dove and they told me over the phone that it was fine. I use Dove, Garnier Fructus and Pantene ( I like variety) and bring my own when going to the salon. I use Lever 2000 bodywash. I read the label and it looks okay, Keri Lotion or Suave ( which are gluten-free (Suave read label first) ). Hang in there!

Terri

hapi2bgf Contributor
hapi2bgf
Posted

You may want to rethinck the Lever soap. I loved Lever soap, but when I called Unalever (the parent company) they said Lever is not gluten-free. I use Dove now.

Suave product line is generally ok. Read the labels.

flagbabyds Collaborator
flagbabyds
Posted

I use panteen and toms of maine

terri Contributor
terri
Posted

Thanks for the warning about the Lever. I guess that goes to my husband too, along with all the expensive shampoos and conditioners! Will use Dove or is TONE liquid okay, do you know? Thanks!

terri Contributor
terri
Posted

I just got off the phone with Lever 2000 bodywash. They are a Unilever company and follows the guidelines where if there is any oat, barley, wheat or rye present in any of their products, it would be clearly listed on the label as such. It would not be hidden under some chemical sounding name. Unilever also owns Lipton and Ragu and the same applies to them. So, I can use my Morning Sky bodywash again as it does not have any wheat, barley, oats or rye listed. :) Now if every company could be like that!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    2. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
    3. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    4. knitty kitty
      0

      Vitamins I Take

    5. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748
    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.