Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oscal D For Osteopenia


floridanative

Recommended Posts

floridanative Community Regular

I tagged this on another thread but no one replied so I had to start a new topic. My GI doc gave me my bone scan results (which show I have Osteopenia) and there were three numbers ranging from -.09 to -1.6. She told me to take otc Oscal D, 500mg daily. She also told me to make sure it was gluten free.....thanks doc. Now I've read what everyone else here takes for Osteopenia (which I know is not as bad as Osteoperosis) and most of you take Fosamax or Actonel. Is an otc supplement really what I need? I don't want to take something that is not strong enough but I also prefer an otc pill to an rx if it will do the trick.

Please give me some opinions as I'm seeing my pcp next week and I'm going to see if she agrees with the GI or not. But from personal experience I trust you people (other patients) more than I do any doctor I've met to date.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

make sure to take a magnesium supplement. studies have shown that magnesium is just as, if not more, important as calcium in celiac patients for bone density. the appropriate quanity is whatever makes for a 2:1 calcium to magnesium ratio. (so, for every 500mg of calcium you take, you want 250mg of magnesium.)

jenvan Collaborator

Also--great "bone builders" are exercise, walking and weight-lifting. My mom raised her levels back to normal (from osteopenia) with walking and weight-bearing exercise. She did not take any medications.

floridanative Community Regular

tarnalberry - yes I read another post of your about magnesium so I'm going to get that too. The Oscal D is gluten free - I called today. I'll get the magnesium and Oscal tomorrow. I have a shoulder injury so I can't do anything with my left arm but my pt excercises but I'll get on the treadmill for now. Hopefully my arm will heal and I can get back into power yoga which you can add weights to.

jenvan - how are you? Thanks for telling me about your Mom. I'm going to do the supplements for now and hopefully I can get off them eventually. I'm so glad to be off gluten but wish I'd found out about Celiac before I stopped absorbing so many nutrients. I'm about to go off iron but I'm staying on the folic acid rx and otc b12 for now. I feel like a 60 year old when I fill up my weekly pill box.

Guest greengirl

My ob/gyn thought that I had osteopenia based on a foot scan that she did in the office, however a full body DEXA scan showed that I was in the normal range. Anyway, if it had shown osteopenia she said she would have put me on Fosomax. I would probably get a 2nd opinion about taking only otc calcium. You wouldn't want time to go by and then find out that it wasn't enough to prevent osteoporosis from developing.

Christine

jenvan Collaborator

Pming you :)

floridanative Community Regular

For those of you who understand supplements - my pcp told me I have to take 1000mg a day of the Oscal and that my numers on the scan are not high enough to warrant a calcium rx (yea!) but I'm taking magnesium too so I guess I have to take 2 of those with the 2 500mg Oscal pills. The magnesium I bought is a cheap gluten-free drugstore brand and it starts crumbling before I can swallow it and it tastes nasty. Is there a brand of magnesium that is coated that others have tried? I'll take the rest of what I have but I have to find another magnesium pill that is not so chalky.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
floridanative Community Regular

Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

Satori Newbie
Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

I've read a lot of stuff on needing the mag and I have to agree with it. My T-score is -1.4 and I've opted not to take the fosamax and just do the supps for a couple years and I do take higher then normal mag since I have chronically low levels of it when tested. (I still have serious malabsorption issues) There is stuff on it here on celiac.com https://www.celiac.com/st_prod.html?p_prodi...-36103509980.9e and they list several studies at the end.

BRUMI1968 Collaborator

Side effects of fosamax:

Stop taking FOSAMAX and call your doctor right away if you get any of these signs of possible serious problems:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.