Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, Am I Looking At An Intolerance? Confused


Rachel13

Recommended Posts

Rachel13 Newbie

Hi everyone, ok, so heres the thing. Ive pretty much had zero energy my whole life which i put down to iron even though i take iron suplements on occasion and multivitamins, and im constantly plagued by mouth ulcers.

I started on the Atkins Diet 3 weeks ago which cut out all forms of carbs(bread, milk, pasta, sugar ...) except from green vegies.

I felt great on this diet, thing is 2 days ago i had some jelly with cream for dessert and felt a little sick, gassy and bloated but just shrugged it off, the next day i had 1 slice of bread and jelly & cream, couldnt eat for the rest of the day, major gas and bloating and feeling like i was going to be sick all day.

I thought it may have been the jelly and cream, didnt have any today, have had 1 slice of bread and all the symptoms are back. I remember before starting this diet that every time i ate pasta i felt really crap afterwards.

Im a little concerned and confused, am i looking at a food intolerance/sensitivity here.? Please any help would be greatly appreciated.

Thanks for listening :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

It sounds like you could very well have an intolerance to gluten. The first day you had cream did you have any bread or anything with that. Dairy could be another thing. Atkins diet is good for the short term but you do need some carbs, just not the white flour etc. Brown rice is good. You may want to add in some dairy and no more gluten for a week or two and see how you feel. Then cut back out dairy and add back in some gluten and see how you feel. If you feel bad right away obviously don't continue but it may tell you whether you have a problem with one or both. The other think is testing. There is allergy testing which may or may not tell you what you are allergic to and/or there is enterolab which does stool tests for gluten/dairy/soy/egg/yeast if you want to pay for all of them. www.enterolab.com

You may be able to talk you doctor into a celiac panel if you notice obvious problems with ingesting gluten. From reading others posts there are a total of 5 tests for the celiac panel.

Welcome to the forum. You've come to the right place. There are a lot of people on here who can help you. :)

loraleena Contributor

Absolutely!!!

BRUMI1968 Collaborator

I had perpetual canker sores before quitting gluten; and was very tired much of the time, from not being able to walk up a slight hill w/o getting winded, to sleeping four hours in the middle of the day on top of a ten hour night of sleep.

Quitting gluten totally helped the first, and I'm in the process of feeling better from the second. I also was itchy a lot, and now I'm hardly itchy at all.

It sounds like gluten intolerance to me. (Dairy might be a problem, too. IF you have Celiac, the villi in your intestines have been gummed up, and that is where you get lactase, the stuff you need to digest dairy.)

-Sherri

Mia H Explorer

You sound exactly like my husband! Mouth sores and life long tiredness.

L-lysine 500mg, 1 tablet 1 to 3 times a day cured his canker sores. (my naturopath told me about this and it works great for him).

The tiredness is definately a symptom of celiac and gluten intolerance. After pasta for lunch I would sleep in the afternoon.

If someone hasn't said it yet, if you suspect celiac don't go off gluten too long before having your Dr test you or it can screw up your blood test.

Good luck and welcome.

Mia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.