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Baby Born With Active Celiac?

Satori

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Satori Newbie
Satori
Posted

I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

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ravenwoodglass Mentor
ravenwoodglass
Posted
I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

First congratulations on the new addition to your family. Please don't feel guilty about the gluten exposure. It wasn't like you stopped at Dunkin Donuts. You caught everything quickly and all will be fine. You are so lucky the cause of your childs failure to thrive was found at a young age. And with the new baby showing signs you have once again done a great job of catching it early. In the long run, IMHO it is not a bad thing that both kids need to be gluten-free. I think it is harder when there is both gluten and non gluten foods around.

TCA Contributor
TCA
Posted

Satori,

You and I are in close to the same shoes, except I wasn't smart enough to figure it out with the first child (finally diagnosed a 3). Finally figured it out with my daughter and she is doing much better nursing gluten free. I also discovered I have issues with gluten after going on the diet for her. Never would have guessed it otherwise.

Please don't beat yourself up. I make mistakes all the time and I kick myself constantly. I know how guilty you feel, but on the positive side, at least you KNOW she can't handle gluten. Otherwise, you might have always wondered. I'm so glad you figured it out, though.

Welcome to the board and I hope everyone feels better soon. Feel free to PM me if you need to VENT!!!!!

KayJay Enthusiast
KayJay
Posted

Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Satori Newbie
Satori
Posted
  • Author
Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

KayJay Enthusiast
KayJay
Posted
Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

Thanks I am going to go and check what kind of surup we have. :blink: I hope you can all get better quickly now that you know :)

mmaccartney Explorer
mmaccartney
Posted

Don't feel bad! You did everything you could. There are so many things out of our control with this disease, particularly what will or won't activate celiac in our offspring.

I understand though. My children don't have active celiac, but did inherit the genes for it. Now it is just a matter of time...

But, if you still want good chocolate frosting, check this topic!

Open Original Shared Link

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Guest tracey and emma
Guest tracey and emma
Posted

All i can do is just repeat what the others have said. my daughter is almost 3 and we only came down with gluten as a possiblity 5mths ago. She has been failer to thrive all her life.

Well done to you all, i wish we had been so quick. so really don´t feel bad and making mistakes is so easy :)

take care

tracey

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      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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