Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Gluten Free With ?'s

AshleyE

Recommended Posts

AshleyE Apprentice
AshleyE
Posted

Hi, I am new to this forum, but it has helped me so much. It is so great to read about other people's experiences. I have had headaches my whole life, chronic fatigue for ten years, anemia and I've always beeh slender. About a month ago I started losing weight, I lost about seven pounds in two weeks, which I can't really afford to lose since I'm 5'6" and 110 to begin with. I kept getting colds, and my fatigue was so bad I didn't even want to lift my head off the pillow. The optometrist I work for suggested that it may be celiac, so after doing some research, I stopped eating gluten. I have only been gluten free for three weeks, but already I feel so much better. I actually have enough energy to make it through the day. :rolleyes:

Anyway, my question is this: I have never had any type of reaction to my lotions or anything on my skin, but since going gluten free I have little red pinprick-like bumps all over my forearm. Could this be a sign of DH? I checked my lotion, and the one I have been using (along with my shaving cream) has gluten in it. Could my sensitivity to gluten have gone up because I've stopped eating it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi, I am new to this forum, but it has helped me so much. It is so great to read about other people's experiences. I have had headaches my whole life, chronic fatigue for ten years, anemia and I've always beeh slender. About a month ago I started losing weight, I lost about seven pounds in two weeks, which I can't really afford to lose since I'm 5'6" and 110 to begin with. I kept getting colds, and my fatigue was so bad I didn't even want to lift my head off the pillow. The optometrist I work for suggested that it may be celiac, so after doing some research, I stopped eating gluten. I have only been gluten free for three weeks, but already I feel so much better. I actually have enough energy to make it through the day. :rolleyes:

Anyway, my question is this: I have never had any type of reaction to my lotions or anything on my skin, but since going gluten free I have little red pinprick-like bumps all over my forearm. Could this be a sign of DH? I checked my lotion, and the one I have been using (along with my shaving cream) has gluten in it. Could my sensitivity to gluten have gone up because I've stopped eating it?

Yes, your body is trying to tell you to stop using gluten topically. It is also very easy to accidentally ingest a bit. You also need to make sure your shampoos and other hair products are gluten-free.

Guest schmenge
Guest schmenge
Posted
Anyway, my question is this: I have never had any type of reaction to my lotions or anything on my skin, but since going gluten free I have little red pinprick-like bumps all over my forearm. Could this be a sign of DH? I checked my lotion, and the one I have been using (along with my shaving cream) has gluten in it. Could my sensitivity to gluten have gone up because I've stopped eating it?

Prior to my diagnosis I was pretty asymptomatic. My first "glutening" came after about a month and I reacted in a more "typical" way. So yes, I think after "getting off the gluten" your body reacts differently when you do get gluten.

Ursa Major Collaborator
Ursa Major
Posted

Hi Ashley, and welcome to this board. I know that many people say that you don't get reactions from lotions and shampoos unless you ingest them. But I have the same problem as you, if I use soap, lotion, shampoo etc. with wheat germ, I will have a skin reaction similar to yours, plus insane itching, without getting any gastrointestinal symptoms at the same time.

So, you would do well to go out and buy gluten free personal products, which will likely stop this problem.

AshleyE Apprentice
AshleyE
Posted
  • Author

Thanks for the replies. :D I checked my body wash, toothpaste and soap. I'm not sure what ingredients to look for on products. Is there a list of ingredients available somewhere? I still need to look into my handsoap and shamoo/conditioner. I use Redken, does anybody know if it contains gluten?

Thanks!

Lisa Mentor
Lisa
Posted

I use Dove soap and shampoo with out issues. Once you learn to read lables it won't be a problem for you, but it will take come time to know what is safe and what is not..... Believe me, it is truely a slow learning process, but not one than can't be managed. It just takes time to learn alot in a short period of time.

We have all been through it and it does get so much earier. Take heart. There is an end to this short lived tunnel. Being gluten free is not all that bad, and you can eat very well.

Nini, on the site has a beginners starter kit that may be helpful to you now. I am sure that she would be will ing to send it to you. Just e-mail her.

Good luck, and ask away, someone is alway here.

Lisa

julie5914 Contributor
julie5914
Posted

Wait, are they itchy? If not, do they look about as far apart as your hair follicles? Look up keratosis pilaris (chicken skin- nice nickname, huh). It doesn't itch, just looks funny and affects about 50% of people. I use a body scrub and a strong glycolic acid lotion I get from the derm to keep mine at bay.

P.S. I still avoid topical things with gluten in them just to be safe even though I don't get the DH rash.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748
    Rrenee2990
    Newest Member
    Rrenee2990
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.