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Borderline Tests, Now Floating Stools For 6 Weeks.


laura3377

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laura3377 Rookie

Hi Everyone -

I was tested last year for celiac and had borderline results meaning I was only a number or two away from being positive on the IGG and TTG. I have had all sorts of symptoms for some time now but just recently in the past few weeks have started having bulky, floating stools which I have never had before. I am concerned about this since it's not normal for me (usually it's constipation). I have not had any changes in diet so confused about what's going on. I really think maybe I should just go off gluten and see what happens but then again, I would like to have an official diagnosis. Any words of advice?

Thanks a lot!

Laura


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eKatherine Apprentice

It's up to you whether you go gluten-free to see if the diet helps or wait to see how much sicker you get, which may still not get you a positive diagnosis. If you want more testing, go to the doctor now.

aikiducky Apprentice

If you indeed have celiac, as the intestines get more damaged your test results should also get higher in the positive range. So you could test again. But keep in mind that you might have to be pretty sick before you do test positive, many people on this board have chosen not to wait for that to happen but have tried the gluten free diet without a diagnosis, and stay on the diet because it helps. So your other option is to just try the diet and see how you feel, but then you won't be able to get a diagnosis later because the numbers will go down again on the diet.

Pauliina

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    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
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      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
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