Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptom?


jennyj

Recommended Posts

jennyj Collaborator

Today I was sitting at work talking to a couple of friends rubbing the left side of my neck because it hurt. One of my friends asked me what was wrong and I said it was a little sore and she said I had a large lump?. or swelling. She pointed to where it was and is was very tender. I'm going to call my doc tomorrow but was wondering if anyone knew what it could be. My throat isn't sore just the neck :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

goiter?

jennyj Collaborator

whats a goiter :blink:

Girl Ninja Newbie

Swelling of the thyroid gland. It usually has to do with iodine deficiency in my neck of the woods. I found this:

A goiter is an enlargement of the thyroid gland. It is not cancer.

Causes, incidence, and risk factors

There are different kinds of goiters. A simple goiter usually occurs when the thyroid gland is not able to produce enough thyroid hormone to meet the body's needs. The thyroid gland makes up for this lack by enlarging, which usually overcomes mild deficiencies of thyroid hormone.

A simple goiter may be classified as either an endemic (colloid) goiter or a sporadic (nontoxic) goiter.

Endemic goiters occur within groups of people living in geographical areas with iodine-depleted soil, usually regions away from the sea coast. People in these communities might not get enough iodine in their diet (iodine is vital to the formation of thyroid hormone). The modern use of iodized table salt in the U.S. prevents this deficiency. However, inadequate iodine is still common in central Asia and central Africa.

In most cases of sporadic goiter the cause is unknown. Occasionally, certain medications such as lithium or aminoglutethimide can cause a nontoxic goiter.

Hereditary factors may cause goiters. Risk factors for the development of a goiter include female sex, age over 40 years, inadequate dietary intake of iodine, residence in an endemic area, and a family history of goiter.

Guest BERNESES

Could also be a lymph node. I woke up two weeks ago with a huge lump in my jaw and 2 smaller ones. The lump was an infected salivary gland and the smaller ones were lymph nodes. You have lymph nodes in a lot more places than i ever knew!

Let us know what happens.

eKatherine Apprentice
Could also be a lymph node. I woke up two weeks ago with a huge lump in my jaw and 2 smaller ones. The lump was an infected salivary gland and the smaller ones were lymph nodes. You have lymph nodes in a lot more places than i ever knew!

Let us know what happens.

I used to get swollen lymph glands when I lived a more physically stressful life. One particularly painful one was treated with and responded to antibiotics.

dionnek Enthusiast

I am having the same pain (been having it for about a month since I've gone gluten-free but never before going gluten-free), however, you can't see or feel any lump in mine. It's just a pain that comes and goes in the left side of my neck, right above the collar bone, and it is definitley not a muscle or anything like that. I'm seeing a dr. today - will let you know what he says.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jennyj Collaborator

I went to the doctor today and he took several pints ( ok vials but it felt like more)

of blood. He said it could be an infection of the gland, mono, or even mumps, but he really doesn't think it could be mumps. He should know something Wed. He put me on an antibiotic and said if I wasn't better Wed. He may want to do a biopsy.

BRUMI1968 Collaborator
I went to the doctor today and he took several pints ( ok vials but it felt like more)

of blood. He said it could be an infection of the gland, mono, or even mumps, but he really doesn't think it could be mumps. He should know something Wed. He put me on an antibiotic and said if I wasn't better Wed. He may want to do a biopsy.

Not to dis your doc, but what is up with docs giving antibiotics B4 they know what's wrong with people. That's so annoying, especially when folks have sensitive guts and those antibiotics are going to fry all your good bacteria. Arg.....

It is a bizarre way to conduct medicine - give the pills first, if they work, that's what it was. What if time cured it and the pills were just wasted.

Sorry. I shouldn't rant about this on your post. I hope that your pain/lump gets better. I know it's always disturbing to find lumps and bumps that don't belong.

Guest BERNESES

Jenny- Hope the antibiotic does the trick and you don't need a biopsy. Hopefully it's "just" an infected gland.

I am having the same pain (been having it for about a month since I've gone gluten-free but never before going gluten-free), however, you can't see or feel any lump in mine. It's just a pain that comes and goes in the left side of my neck, right above the collar bone, and it is definitley not a muscle or anything like that. I'm seeing a dr. today - will let you know what he says.

Dionne K- Do you have pain like that any place else? It almost sounds like one of the trigger points for pain in fibromyalgia. Either way, you should get it checked out.

Guest nini

lumps and bumps can be any number of things, usually benign. As a massage therapist, I'd be more inclined to think it was a knot in a muscle or a swollen lymph node (that just needs to be detoxed)... does rubbing it aggravate it or make it feel better? Have you tried putting cold or heat on it to see if that makes a difference? I also think it's peculiar for the Dr. to give antibiotics "just in case" it's something... "first do no harm" and by giving antibiotics if they are not needed is possibly doing harm...

Guest BERNESES

I know- my doctor is VERY hesitant to give antibiotics. Which is good considering I just did my first round since developing active Celiac symptoms and it did a number on me. maybe it's because it's 4th of July weekend and no one will be seen again until next Wed.??? just a thought.

jennyj Collaborator

Being new to all this I didn't think about antibiotics having an effect on celiac. Thanks for the info. I haven't tried ice or heat on it yet. He did ask if I would be at the store Saturday or Monday but then said he would let me know Wed. I really appreciate this site because it gives me new ways to look at things and people who seem to care even though they do not know me. It's so nice to be able to say things and have others know where you are coming from. Thanks.

jennyj Collaborator

Called the doc today. White blood count was normal, hemoglobin was 14.5 (YEAH it's never been that great, guess iron infusion was successful), the mumps test isn't back but they really doubt that is the problem. I am supposed to call back Wed. to see if the lump is better after 7 days on antibiotics(not yet) and he may want to do a biopsy.

dionnek Enthusiast
Jenny- Hope the antibiotic does the trick and you don't need a biopsy. Hopefully it's "just" an infected gland.

Dionne K- Do you have pain like that any place else? It almost sounds like one of the trigger points for pain in fibromyalgia. Either way, you should get it checked out.

this is the only place i have this pain (left side of neck only, right above collar bone. The dr. didn't know what it was when I went on Friday - said could possibly be a swollen lymph node and he could put me on antibiotics if I wanted (which I didn't), so he said to wait 2 more weeks and if it doesn't go away then we should do xray or MRI. I rub it, but it doesn't help the pain - probably makes it worse. I'll try a heating pad - that might work when it's hurting. He said my thyroid is higher up, so it shouldn't be that. Very wierd!

scrunt Newbie
Called the doc today. White blood count was normal, hemoglobin was 14.5 (YEAH it's never been that great, guess iron infusion was successful), the mumps test isn't back but they really doubt that is the problem. I am supposed to call back Wed. to see if the lump is better after 7 days on antibiotics(not yet) and he may want to do a biopsy.

I've had a bunch of problems with my neck/ throat area and it has been a combination of:

- swollen lymph nodes (either from infection, or body not flushing stuff out enough, so maybe a kidney infection as well)

- saliva duct stones (if you have horribly bad breath and feel like something is stuck in there)

- a goiter (which can be from too little or too much iodine)

- candida overgrowth (too much sugar does strange things)

At one point I had issues with swallowing, and sore neck, and swollen cheeks. It was a combination, we think of saliva duct stones and a too-much iodine goiter. Supposedly Celiac's metabolize iodine differently than others do, and need to go on iodine-free salt (ie kosher or pickling salt) in order to get that under control.

So, keep on it with your doctor. Good to hear he didn't give you antibiotics first off.

dionnek Enthusiast

What kind of dr did you go to for all this, and what kind of tests did they do? The dr. that i just went to was an allergist (I wanted to get other food allergies tested), so he didn't know very much about it. He said my endo probably wouldn't know since it seemed to low for my thyroid, but he didn't really say who I should see.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748

    GFBB95
    Newest Member
    GFBB95
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.