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Newly Diagnosed - So Much Pain

chgomom

By chgomom
in Coping with Celiac Disease

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chgomom Enthusiast
chgomom
Posted

hello,

I am a newbie here so my apologies if this question hsa been asked a million times before.

I spent years being sick, and in pain burping, getting sicker and sicker and them just telling me I neeeded to eat better and I could'nt possibly be eating as well as I was eating since I was this sick. Then the yrs of antibiotic creams and garbage with the DH I had on my face telling me I was eating too many sweetis and it was just acne.

Anyway, about 2 mos ago I fired my doctor went to a rheumatologist crying and begging him to run what ever test he could think of that he thought might fit my history. One of them was celiac, and it came back 24 with a threhold of 10 or below being normal. He said when I saw your skin and your face, and the fact it all centered around food, I thought that might be it.

Anyway....now I have been learning and going gluten free. No biopsy as I am opposed to the unless this doesn't get better, which it actually has a little.

My question though, is muscle and joint pain....I woke up this morning sleeping as I normally do and my back felt like I had been beated, so did my arms and my eyes are dry. I've had muscle aches and this isn't it...it feels deeper. I have another appt on Wednesday because they are thinking I could have some problems with my minerals....is this achiness and pain common....its really quite painful....I mean I want to just curl up with a heating blanket and veg...

Sorry for whining but its quite painful and I just want to know if anyone else has gone through this....

Also...can anyone offer any quick meal suggestions for someone highly sensitive.....

Thanks all!

Erin

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CarlaB Enthusiast
CarlaB
Posted

Sorry you're feeling crummy. I had terrible joint pain, so your muscle/joint pain could definately be from this. I take msm, glucosamine, chondroitin for my joints, and it helps. I apparently still have some deficiencies as I still need all of the supplements I take as compensation for the malabsorption.

Quick meals: corn tortillas wrapped around whatever you like -- chicken, avocado, cucumber, beans, etc., Eggs -- cooked with veggies like asparagus, leeks, mushrooms, anything on the grill -- be careful as regular charcoal is not gluten free you need the natural kind. Keep it simple, meats, veggies, eggs, fish, fruit, etc. When I was sick and didn't have the energy for even simple meals, I ate Amy's frozen dinners.

queenofhearts Explorer
queenofhearts
Posted
hello,

I am a newbie here so my apologies if this question hsa been asked a million times before.

I spent years being sick, and in pain burping, getting sicker and sicker and them just telling me I neeeded to eat better and I could'nt possibly be eating as well as I was eating since I was this sick. Then the yrs of antibiotic creams and garbage with the DH I had on my face telling me I was eating too many sweetis and it was just acne.

Anyway, about 2 mos ago I fired my doctor went to a rheumatologist crying and begging him to run what ever test he could think of that he thought might fit my history. One of them was celiac, and it came back 24 with a threhold of 10 or below being normal. He said when I saw your skin and your face, and the fact it all centered around food, I thought that might be it.

Anyway....now I have been learning and going gluten free. No biopsy as I am opposed to the unless this doesn't get better, which it actually has a little.

My question though, is muscle and joint pain....I woke up this morning sleeping as I normally do and my back felt like I had been beated, so did my arms and my eyes are dry. I've had muscle aches and this isn't it...it feels deeper. I have another appt on Wednesday because they are thinking I could have some problems with my minerals....is this achiness and pain common....its really quite painful....I mean I want to just curl up with a heating blanket and veg...

Sorry for whining but its quite painful and I just want to know if anyone else has gone through this....

Also...can anyone offer any quick meal suggestions for someone highly sensitive.....

Thanks all!

Erin

Welcome to the forum-- ask ANYTHING you want here. That's the whole idea! This board has been a real lifesaver for me, by far the most helpful source of Celiac wisdom & moral support.

I've definitely suffered from "bone pain" over many years, mainly in knees & hips but sometimes all over. I used to say it felt as though I'd fallen down the stairs-- just aching all over. It seems to have diminished a bit in my 1 month of gluten-freedom, & many people say they have achieved great relief over time, so I'm hopeful.

Glucosamine helped me too. But the main thing I've found extremely helpful is yoga-- it hurts quite a bit while I'm doing it, but I think in my case, muscle tension adds hugely to the overall achiness & anything that loosens me up helps a lot. In my experience I can hurt 20 minutes a day doing yoga, or all day not doing it!

Salad is my favorite quick meal in summertime, with boiled eggs or cheese or leftover chicken for protein, lots of dark greens, tomatoes, cukes, carrots, whatever's on hand. And rice crackers on the side for crunch & carbs. In the winter I make a big batch of vegetable soup when I have time, & have a bowlful whenever I need something in a hurry.

Hope you feel better soon!

Leah

whitball Explorer
whitball
Posted

welcome to the forum. I have had many years of muscle pain, fatigue and burning. The gluten free diet has been a godsend. Listen to the advice offered here on this forum. The people here have been awesome and helpful. Ask questions and don't be worried if it sounds stupid. It's not. Stick with the diet and start slow. Don't introduce too many new foods. Let your stomach heal. This is the same good advice that I was given. Good luck and take care.

nikki-uk Enthusiast
nikki-uk
Posted

See my post here

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    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

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      Bob red mill gluten free oats

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