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Muscle Pain

chgomom

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chgomom Enthusiast
chgomom
Posted

Hi All

I am a newbie here and went through a couple of yrs of garbage to get my diagnosis only after I fired my doc and went to a rheumatologist and begged him to help me figure out what was wrong.

So...my question is in muscle or bone pain really all that common...I feel like I am in more body ache kind of pain now that I am going gluten free....my eyes are even dry....

Or am I just being a big baby??

Thx all...sorry for asking something that probably been asked a million times...

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nikki-uk Enthusiast
nikki-uk
Posted

Although muscle and bone pain can be typical with celiac disease (are you G.F yet?)the fact that you mention your eyes are dry made me take notice.

Dry eyes and mouth can be a symptom of an autoimmune disease called Sjogrens disease.

I would go back to the rheumatologist and mention this.

As you have celiac disease you are more prone to other auto-immune diseases

That said,when first diagnosed with celiac disease and you go G.F there can be a period of feeling worse before you get better.

For some coeliacs diarrhoea isn't their biggest symptom-joint,muscle and bone pain can be-and it can take a few months for things to settle down.

Hope you feel better soon,here's a link about Sjogrens

Open Original Shared Link

Guest Robbin
Guest Robbin
Posted

Hi and welcome. Perhaps you have fibromyalgia too. Many of us on here have fibro and you do feel worse before you feel better. As for the eyes, it could be autoimmune, or it could be from general poor health from the celiac. I would talk to your dr., but it could be a matter of being able to absorb nutrients when you heal.

chgomom Enthusiast
chgomom
Posted
  • Author

Hello!

Thanks for the post back, I did have those labs done and it came back negative although it does run in my family. I think I will go back to him a few months after the gluten-free diet and tell him I to run it again.

ebrbetty Rising Star
ebrbetty
Posted

welcome to the board, I was thinking fibro too, the only thing that helps me with my muscle pain is strengthening your core and exercise, sometimes I have to force myself to get up and get on my glider or lift weights but its made a big difference.

judy05 Apprentice
judy05
Posted
Hi All

I am a newbie here and went through a couple of yrs of garbage to get my diagnosis only after I fired my doc and went to a rheumatologist and begged him to help me figure out what was wrong.

So...my question is in muscle or bone pain really all that common...I feel like I am in more body ache kind of pain now that I am going gluten free....my eyes are even dry....

Or am I just being a big baby??

Thx all...sorry for asking something that probably been asked a million times...

Have you had your thyroid gland checked? Thyroid disease is an autoimmune disease that goes along with Celiac, diabetes, etc...

barbara3675 Rookie
barbara3675
Posted

These have all been good suggestions.....fibro and thyroid. I have both and very dry eyes. I take lots of magnesium with malic acid plus Mobic which is a strong anti-inflammitory which keeps the fibro in check (other than some flares during times of stress) and I take Synthroid for the thyroid condition. There are no blood tests for fibro, only ones to rule it out. Best wishes in nailing your diagnosis. Barbara

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chgomom Enthusiast
chgomom
Posted
  • Author

Hello all,

The only thing that came back in my blood work ever was Celiac...on a thresh h0ld of 10 I was 24 so more than double the high end of negative, so as a result positive. My thyroid function is normal, but my c3c and c4c are way off and my crp, which is an inflamtion marker in this instance is high as well. I am severly sensitive and my doc thinks because I went so long with them jerking em around saying it was gerd, or needing to "eat better" that I have some neuromuscular aspects coming into play here now :(

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
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