Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroparesis

ebrbetty

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

hi, Has anyone found something to help with this? either RX or OTC..I tried Reglan, but it made me feel worse, about 8 times out of 10 after I eat [1-3 hours] it feels like I ate a rock, the pain and heavyness is right in the middle of my gut, the food just sits there..drives me crazy, if I eat a meal at noon I can't eat dinner, still full and hurting.

any ideas?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tangerine Rookie
Tangerine
Posted

I have gastroparesis too. Reglan basiclly made me feel suicidel. it was aweful. And I only took it for two days!I think there is a drug called ZelNorm. It is for people with IBS, but my gastro doc said they often perscribe it for gastroparesis too. I have never taken it, so i can't help you there. but maybe you can ask your doctor about it.

I just try and eat small meals, with a lot of water. A lot of times gastroparesos can be caused by too little stomach acid- but normal MD's won't tell you that. You might want to try some apple cider vinegar or HCL tabs. Just make sure you stomach lining is healed!

ebrbetty Rising Star
ebrbetty
Posted
  • Author
I have gastroparesis too. Reglan basiclly made me feel suicidel. it was aweful. And I only took it for two days!I think there is a drug called ZelNorm. It is for people with IBS, but my gastro doc said they often perscribe it for gastroparesis too. I have never taken it, so i can't help you there. but maybe you can ask your doctor about it.

I just try and eat small meals, with a lot of water. A lot of times gastroparesos can be caused by too little stomach acid- but normal MD's won't tell you that. You might want to try some apple cider vinegar or HCL tabs. Just make sure you stomach lining is healed!

thank you for the reply and help, my heartburn is so bad, I can feel the burning on my tongue :blink: I eat rolaids, no help..baking soda was helping till I broke out in hives and almost stopped breathing..salt allergy!!

I'll go try some apple cider..what is HCL?

btw..I started with a new gasto this week, told her i've tried ever PPI on the market with no help, they actually made the heartburn worse, every other DR told me this is not possible, but she did say some ppl do get worse from them!

thank you again

Betty

Tangerine Rookie
Tangerine
Posted

hello betty,

I have tried many PPI's too, and they either did nothing, or made my heartburn worse! I have recently---like last week, discoverd I have been having intolernaces to other food as well as gluten :(. I have been researching up a storm and found that the reason for my gastritis and gastroparesis could be caused by other food intolerances, and other food intolerances can make your stomach not produce enough acid- leading to gastoparesis because the food does not have enough acid to digest it properly. that way it justs sits there and hurts! i feel you pain!!! I feel like the PPI's did not work because it is making the acid your stomach even less than it already was... makeing my heartburn worse, and allowing my food to sit in my stomach longer.

I am much more into holistic approaches than taking pills, so that is why i have not tried zelnorm. HCL is a suppliement that contains HCL(hyrochloric acid- the acid your stomach produces) and it can help suppliment your loss of HCL. it comes in 100mg to 650mg tablets. I would say start out slow... taking 100-200mgs at first right before each meal, and then increase it with each meal until you feel warmth in you tummy. the warmth means that you have a little too mcuh acid. Apple cider vinegar works the same way. I would mix a little bit. like 1 tsp--- and work your way up, a bit of water and take it with a straw as it can damage some peoples teeth. But before you do any of this you need to make sure your stomach lining is healed. if you have gastritis like I do, it could make you even worse!

You might want to check into other intolerances... my heartburn ha gotten much better over the past few days since I cut some more foods out of my diet. i'm also going to get an ELISA test done to see for sure what else my body reacts to.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you so much for the great reply, I had a RAST test, no food allergies [besides the salt in lg doses] but many intolerances.

I'm going for a colonoscopy and the test with the camera down my throat into belly in a few weeks.

do you get a terrible "deep down" type of pain in the middle right between the ribs?

I just took a little apple cider a few minutes ago, I will stick with that to see if it helps, if it does I guess I should order some HCL..I agree, would much rather go with the holistic approache than another Med from my DR.

I went to a cookout at my moms today, hubby cooked me a all-natural, no nitrate, preservative free burger, found I can't eat red meat with all the crap they inject, so only meat from whole foods and I made an awesome flourless chocolate cake..normally I stay away from chocolate and foods with butter, but I ate a piece :rolleyes: think thats what may have done me in, possibly the gluten-free roll too..as you said we need to constantly check for other food intolerance'sand now I seem to be having trouble with gluten-free Breads, I think they;re too heavy for my belly.

thank you again, I appreciate the help and support!

hugs Betty

Tangerine Rookie
Tangerine
Posted

I'm glad to help!

I get heartburn that goes up into my mouth sometimes and makes my voice 'feel' rhaspy, but people say it doesn't sound it. I aldo get intense pressure right above the X-something(that bone at the end of your sternum) and a burning pain. I then also get this weird sideache pain on my left side that feels up under my ribs. yuck!

They found out I had gastroparesis after finding food in my stomach on my last biop. Then they did thing with a huge gigercounter.

I hear that it can go away perminetly as long as you address the issue and cause, not the symptoms. So I hope you and I get better!

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you again, we seem to have the same miserable symptoms, I hope we both feel better very soon!!

happy 4th of july

hugs Betty

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.