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? About Going gluten-free


misgiss

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misgiss Apprentice

We just went gluten-free with 3 y/o ds. This could just be a coincidence but a day or two after we started he had a fever for a couple days and selpt A LOT. It's happend in the past where he'll get a fever, no other symptoms and then after a few days he'll be back to normal. His eczema had a big flair but dh and I thought it might be due to the sudden rise in humidity. Well, after the fever was gone his eczema was gone too. Could this have anything to do with starting gluten-free diet?

And one more question: I know everyone is different but how long until we know if it's working/not working? We have seen slight improvement in his D. Not just brown water anymore, but clear water with other "stuff" in it. Still very stinky though.

TIA


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Tia:

The fever would lead me to believe that it might be a touch of the flu. As far as finally feeling better after going gluten-free it has taken me about 3 years. At least I have never heard of a fever/celiac connection but as we all know it can manifiest in many different ways.

Has he been diagnosed with celiac? If he has it's not a question of knowing if it will work or not, he will have to be gluten-free forever. Since he is young I would think that much of the damage can be reversed. Did he have a blood test or the biopsy?

nettiebeads Apprentice
We just went gluten-free with 3 y/o ds. This could just be a coincidence but a day or two after we started he had a fever for a couple days and selpt A LOT. It's happend in the past where he'll get a fever, no other symptoms and then after a few days he'll be back to normal. His eczema had a big flair but dh and I thought it might be due to the sudden rise in humidity. Well, after the fever was gone his eczema was gone too. Could this have anything to do with starting gluten-free diet?

And one more question: I know everyone is different but how long until we know if it's working/not working? We have seen slight improvement in his D. Not just brown water anymore, but clear water with other "stuff" in it. Still very stinky though.

TIA

Well, the fact that you notice a difference in his D would seem to indicate it's working. I would feel slightly feverish when glutened - it probably throws the immune system out of whack. Just keep up the gluten-free diet - change is based on many things - how sick, how long sick, degree of damage, and how totally gluten-free the person really is. Watch out for hidden gluten in meds and toiletries and always beware of cross-contamination.

Hope you guy is well soon!

Annette

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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