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DanAbimytwomiracles

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DanAbimytwomiracles Newbie
DanAbimytwomiracles
Posted

Hi! Well, I'm not happy that I have to join here :rolleyes: , but I'm glad this is here as a resource. I'll work on my signature in a bit, but my name is Christine and I'm 35, I live in NJ with my husband and 2 kids. I figured out I needed to go gluten-free after I finally figured out that my 4 year old twins needed to be gluten-free. I'm also DF (most of the time :ph34r: ) My daughter also has a dairy sensitivity, and my son has sensitivities to dairy and soy (protein, oil & spy lecithin seems OK) and an anaphylactic allergy to tree nuts.

The tree nut thing is what kills me, because many of the gluten-free products out there are possible contaminated for him, so I rarely buy anything that isn't safe for everyone - except my Soy Dream chocolate ice cream B) .

Anyway, I thought I'd say hi before I started replying to anyone's posts :) .

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Lisa Mentor
Lisa
Posted

Welcome, and what a BIG name.

Please read the post, they will be very helpful. There are many here with several allergys and I know they will be helpful.

Welcome aboad.

Lisa

RiceGuy Collaborator
RiceGuy
Posted

Welcome from myself as well. I've personally found this site and its members to be most valuable. I guess the joining requirement helps keep this site open, and free for us to use and benefit from. Well worth the price IMHO :)

CarlaB Enthusiast
CarlaB
Posted

Welcome! I initially didn't feel happy about this whole thing either, but now I recognize the blessing it really is. This forces you to eat fewer processed foods and more whole foods, so you eat so much better than the majority of the people in the country that once you get healthy, you are probably healthier than they are. I know that I generally feel better than other people my age because I'm more in touch with what my body tells me and I eat food that's good for me.

There are a lot of different people here who have found out about their gluten intolerance in different ways and are at different stages of healing. Many have other allergies/intolerances, so there's always someone who can identify with your situation. There are also varying opinions on ideal diet (subject of another current thread) and how to handle situations, so you can read them all and decided what's best for you.

Welcome!

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      Bob red mill gluten free oats

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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