Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie To This


lpasko2

Recommended Posts

lpasko2 Newbie

I have tried very hard to be gluten free and most of my symptoms have subsided but I still cannot sleep and sometimes feel ill even if I know I have not ingested any gluten. It has only been 6 months but I am frustrated and confused. I would like advice from anyone who has endured this for a longer period of time. My friends do not fully understand and I work in an italian resteraunt. please guide me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Welcome to the board...it is certainly bewildering at first. Are you quite sure you're completely off gluten? Hidden gluten, you know, toothpaste, cosmetics, products, condiments/dressings/seasonings/medications/vitamins, all of it? Are you inhaling flour at the restaurant, eating from pans that just cooked something with gluten, or draining rice pasta in a colander that rinses regular pasta? What about dairy....many can't eat dairy for quite a while until intestines heal. MIght you have other food intolerances? This is common as well. It's trial and error for many for quite a while. The good news is, it gets SO much easier and becomes second-nature.

As far as not sleeping - - that's been a problem for me for almost 20 years. I just flat out take something every single night to sleep. The amount has decreased dramatically since going off gluten six months ago, but, I am fierce about getting my sleep and will take this as long as I need it.

Keep reading this board and you will learn so much! I would post more but I am tired and must achieve my oft-elusive goal....zzzzzzzzzzzzzzz

NIght-night and welcome to the board - - it's a great place to learn.

Blessings -

oceangirl Collaborator
Welcome to the board...it is certainly bewildering at first. Are you quite sure you're completely off gluten? Hidden gluten, you know, toothpaste, cosmetics, products, condiments/dressings/seasonings/medications/vitamins, all of it? Are you inhaling flour at the restaurant, eating from pans that just cooked something with gluten, or draining rice pasta in a colander that rinses regular pasta? What about dairy....many can't eat dairy for quite a while until intestines heal. MIght you have other food intolerances? This is common as well. It's trial and error for many for quite a while. The good news is, it gets SO much easier and becomes second-nature.

As far as not sleeping - - that's been a problem for me for almost 20 years. I just flat out take something every single night to sleep. The amount has decreased dramatically since going off gluten six months ago, but, I am fierce about getting my sleep and will take this as long as I need it.

Keep reading this board and you will learn so much! I would post more but I am tired and must achieve my oft-elusive goal....zzzzzzzzzzzzzzz

NIght-night and welcome to the board - - it's a great place to learn.

Blessings -

lpasko2;

Hi,

I, too, am a bit new to this and I have a LOT of problems at night. I also am very frustrated right now because after feeling much better for awhile all my issues seem to be returning. This is all at night: abdominal distension,pain, bloat, gas, tail-bone pain,feeling of "bubbling" in small intestine, joints and bones "cracking", some nausea...Aaaauuugghhh!!! It's only been an "official" three months gluten-free and I am VIGILANT- cook everything myself except my rice cereal. I have been adding in more fruits and veggies which have been difficult for me to digest for awhile. Anyway...what are your night issues? Is it just that you can't get to sleep? I truly sympathize; I've always needed a solid 8 hours to feel well, and that almost NEVER happens. I really hope things get better for you soon. I just keep trying to find ways gluten might be sneaking in or what other things bother me. I'm gluten, dairy, soy and corn free. Very good luck to you.

lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,017
    • Most Online (within 30 mins)
      7,748

    NaomiJane
    Newest Member
    NaomiJane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dora77
      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
    • Scott Adams
      Sounds great, we also have lots of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...