Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergies


Carriefaith

Recommended Posts

shai76 Explorer
shai76, if you don't mind me asking, which foods cause your severe reactions?

I'm a class 3-4 with soy, and a class 2 with milk, eggs, corn, wheat, oats, and yeast. And a class 1 with turkey, tree nuts, fish, and coffee.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
Michi8 Contributor
They say spice mix is allspice, cinnamon, colves, ginger, and nutmeg.

Marcia, thanks for your reply. Does your daughter know for sure what causes her reactions? This is all very confusing for me as I am not 100% sure what caused the reaction. I wish my epipen were free, I had to pay $140! And I don't have insurance! Ah!

I had a skin prick test and they tested for a lot of different foods. I'm not too concerned about the foods I'm allergic to since most of them are easy to avoid except potatoes. I'm not really sure what peanuts do to me since I eat peanut butter all the time! And peanut allergy was very high on the test :blink:

Carrie,

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)

In terms of the peanut allergy, it is possible that you will never have an anaphylactic reaction (given you eat peanut butter regularly.) I never did, I only ever reacted with itchy tongue, throat, ears and lips. The allergist had me carry an Epipen for a while (I think a lot of allergist are being very cautious nowadays), but I think it was overkill (I had lived with my peanut allergy for 26 years at that point!)...there was never a sign of anaphylaxis for me.

I "outgrew" that peanut allergy after I had my first baby. I've since develped new foods allergies in its place. :) From what I understand, completely avoiding peanuts was what helped my body "outgrow" the allergy...now I ingest them on a regular basis to keep my allergy at bay.

Michelle

Carriefaith Enthusiast

Thanks shai76 :)

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)
That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?
Michi8 Contributor
Thanks shai76 :)

That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?

It could be. I've never seen a "Twin EpiPen"...is it a double injection kit? My son's epipen is the standard adult dose, single injection. Because he has a penicillin allergy I only buy and carry one epipen at a time...it expires before it's needed, because it's pretty hard to get penicillin accidentally (although I really need to advocate for my son with doctors, because they prescribe penicillin without thinking.) :rolleyes: I really need to get my son a medic alert bracelet instead, as I think it would be way more helpful if he ever needed medical attention in an accident away from home and family.

Michelle

Carriefaith Enthusiast

Michelle,

Mine is called a Twinject and there are two doses. I'm assuming that's why it is so expensive! There is one auto injector and one manual needle. They have two in case the first dose wears off before you can get medical attention.

A medic alert bracelet is always a good idea for someone with severe allergies. The bracelet would definately help him away from home. I am thinking of getting one myself now that I have this allergy.

sasha1234 Newbie

I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.

Carriefaith Enthusiast
I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.
Hopefully the Twinjects will get cheaper with time. I think that they are a great idea! I got a practice one with no needles from my allergist and they are fairly easy to use.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator

Wow, that's really scary. I've never had that kind of reaction from just eating wheat, but my other allergies (dust mites and pets) can get really bad like that after I've been glutened. If it's within a week of eating a little wheat (it usually ends up being soy sauce in a marinade instead of contamination) then the addition of my pets often causes me to need my inhaler. It just seems to be a cumulative thing for me. One allergy alone won't make my throat close up, but the combination of two things will.

I definitely keep benadryl and claritin in my purse. I have a few inhalers in various places.

Carriefaith Enthusiast
One allergy alone won't make my throat close up, but the combination of two things will.
I am really glad that you shared that. I am wondering if my reaction was from a combination of being exposed to wheat and milk. I was having breathing problems the week leading up to the reaction and I now know that I was eating large amounts of gluten contaminated chips that entire week. I started unknowinly eating dairy contaminated chips a few days before the reaction. I almost wonder if it was an allergen overload. I am hoping that is what happened. But I am pretty sure that the gluten contaminated chips were causing my respiratory problems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.